A Childhood Cancer Survivor Blogging about the World of Childhood Cancer

Posts tagged ‘Dr.Peter Adamson’

Hyundai Hope on Wheels Has Just One Wish… #EndChildhoodCancer

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“We Have Just One Wish… #EndChildhoodCancer “

                                                                      ~Hyundai Hope on Wheels

http://tinyurl.com/yc9uo8x 

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Every 36 minutes, one more child in the United States is diagnosed with cancer. Each year there are 15,000 new childhood cancer patients, and there are over 40,000 children who are currently in treatment. Two out of three children who survive will suffer lifelong effects caused from their cancer treatments. Our children need—absolutely need— politicians, celebrities, businesses, sports organizations, essentially everyone who walks the Earth and breathes, to act to #EndChildhoodCancer We are all called to be Gold Spokes in the Wheel speeding its way to cures.

One of the stellar “Gold Spokes” in the “Wheel” on its way to end childhood cancer is Hyundai. On this day, Hyundai is kicking off their 16th annual Hyundai Hope on Wheels program. Over the past 16 years, they have raised over $86 million to fight pediatric cancer. Yes, $86 million! Michelle Williams has recently joined Hyundai to help them in their wish to #EndChildhoodCancer

On April 9th of this year, Hyundai Hope on Wheels announced a $2 million grant they awarded to fund Children’s Oncology Group’s Project:EveryChild. This grant will allow doctors and researchers access to thousands of cancer specimens in an enormous database at the Hyundai COG Biorepository.

http://www.fenderbender.com/FenderBender/April-2014/Hyundai-Awards-2-million-Cancer-Research-Grant/

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“Hyundai’s generous support to Project:EveryChild will make a significant difference in our ongoing battle against childhood cancer,”

“This crucial funding will ensure that every child diagnosed with cancer in the U.S. will be eligible to participate in and benefit from the advances in research from Project:EveryChild, regardless of the rarity of the type of cancer.”

                                                                                        ~Dr. Peter Adamson

                                                Chairman of the Children’s Oncology Group

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Now that we see how this automobile manufacturer, Hyundai, has huge ambitions to help our kids, I HOPE more and more consumers will turn their attention and their dollars to show their appreciation to Hyundai.

Thank you, Hyundai Hope on Wheels! Very best wishes to youth ambassadors, Ashley Burnette and Kenny Thomas!

What’s in YOUR garage?

Kenneth and Ashley National Youth Ambassadors for Hyundai Hope on Wheels

Photo shared from Hope on Wheels Twitter Page  @hopeonwheels https://twitter.com/hopeonwheels

Guest blogger: Lee Marchiano

 

Pharmaceutical Companies Challenge

Grace: A Child's Intimate Journey Through Cancer and Recovery

The U.S. invests approximately $595,000 for research per victim of pediatric AIDS and only $20,000 for each victim of childhood cancer.

Treating children with cancer is not profitable for pharmaceutical companies.  Without huge changes to the PharmaceuticalCompanyGreedMachine, we will continue to fail the children of our country. Childhood cancer is the number one cause of death by disease in the United States.  Since the causes of childhood cancer remain a mystery, it seems to me that our country should be pouring time, sweat, and money into finding the cause and to creating a cure.

Instead, it seems to me there are many ostriches with their heads and necks stuck deep in the sand.  They don’t want to pull their heads out and look around because the truth will be ugly.  The ugliness is not childhood cancer; the ugliness is the fact that childhood cancer continues its rampage of destruction while we sit idly by.  I don’t have their financial documents in front of me for audit, but I will bet that pharmaceutical companies are making a large enough profit where they would be able to donate a few million for altruistic purposes like wiping out childhood cancer.  Yes, I call on each pharmaceutical company to audit the hearts of your CEO’s.

“The world will not be destroyed by those who do evil, but by those who watch them without doing anything.” ~Albert Einstein

Imagine how difficult it is for a child to fight cancer. Then, take in this reality…

“In the past 30 years ONLY ONE new cancer drug has been approved for pediatric cancer.”

                                                                                       ~Pablove Foundation

Can we, knowing this truth, sit with our mouths silent?

I cannot.

For the children who survive childhood cancer, 2/3 will suffer some form of lifelong effect from the treatment. All too often, it is the treatment that kills a child fighting cancer. All too often, it is the treatment that causes extreme pain and suffering.

http://abcnews.go.com/Health/story?id=2553765&page=1#.Tr7zREOa9tN

We are desperate for new treatments. We have not had a single meaningful improvement in pediatric cancer medication in decades and the children have paid the price,” says Dr. Peter Adamson, chief of the Division of Clinical Pharmacology & Therapeutics at The Children’s Hospital of Philadelphia. “Even though we cure four out of five pediatric cancer patients, even those who survive often go on to have lifelong side effects from the treatment we give them.”

This news story tells more about the difficulty of getting big pharmaceutical companies to develop new, less-toxic treatments for children with cancer…

 http://abcnews.go.com/Health/CancerPreventionAndTreatment/big-pharma-treat-childhood-cancers/story?id=14571277

What a sad truth it is to know that it will take legislation like the Creating Hope Act to lure pharmaceutical companies into doing what is the ethically right thing to do.

I invite all pharmaceutical companies to prove me wrong… show us that the health and happiness of our children are more important than any amount of profit you can gather and store.

Please don’t wait. Time is paramount.

Please continue your support for Reef

http://www.savebabyreef.com/

1,000 Candles for Baby Reef on Facebook:

https://www.facebook.com/groups/70216977000/

 

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Please Sir, May I Have Some More?

Grace: A Child's Intimate Journey Through Cancer and Recovery

“It gives me great pleasure to announce the formation of The Children’s Oncology Group Foundation. The COG Foundation will be able to directly receive philanthropic funds from both individual supporters and organizations.  One key advantage of the Foundation is that it enables COG’s leadership, comprised of a multidisciplinary team of doctors, nurses, laboratory scientists and other allied professionals, to direct funds raised for childhood cancer research to the areas of highest need and opportunity. In an era of rapid scientific discovery, this direct link will allow COG to rapidly respond and support research and new discoveries that have the greatest potential to benefit children with cancer.”

                               ~Peter C. Adamson, M.D.

                                 Chair, Children’s Oncology Group

Source:

http://www.keepandshare.com/doc/3140841/a-letter-from-the-chair-of-the-cog-1-pdf-september-14-2011-11-11-am-463k?da=y

This is great news. I will never forget my doctor, Dr. Dan, explaining to me how the collaboration between medical professionals in The Children’s Oncology Group and their sharing of information from studies has led to saved lives.  I feel the need to repeat Dr. Adamson’s words, “in an era of rapid scientific discovery”!!!

Speaking of “rapid scientific discovery,” did you notice this article from the New York Times about using gene therapy to “train a person’s own immune system to kill cancer cells”? It may be possible that this is the beginning of a whole new way of fighting cancer:

“In essence, the team is using gene therapy to accomplish something that researchers have hoped to do for decades: train a person’s own immune system to kill cancer cells.”

 http://www.nytimes.com/2011/09/13/health/13gene.html?_r=1&pagewanted=all?src=tp

 With all of this encouraging news, I realize that the enormous strides we need to take will require funding for research. It will be next to impossible to achieve adequate funding without raising lots and lots of awareness about childhood cancer. This is why I am thrilled about what has happened with Ellen and The Blanket Fairy! The Blanket Fairy has not given up “Making Some Noise” on The Ellen Show Facebook Page. She has one more message for all of us to share with Ellen:

Please save this photo and then go to Ellen’s page and post the following: 

 

Please COPY AND PASTE THIS:

Ellen PLEASE view this video “Letters To Ellen”. These letters were written to you by kids all over the United States on behalf of the hundreds of thousands of children all around the world. 

http://www.youtube.com/watch?v=yX67K-Y-a7k

Please go to this page and post and share this on your walls and blogs. We need to make more noise to get our mission accomplished! STOP CHILDHOOD cANCER!

The Ellen Show Page: http://www.facebook.com/ellentv?sk=wall&filter=1

At first I thought, gosh, Ellen already did such a kind thing, maybe we should just be grateful and not ask for more.  Suddenly, the image of Oliver Swift dashed through my brain.  He asked timidly, even though he had already been served, “Please sir, may I have some more?”

I hope that Ellen knows we are asking for more because we are grateful. We are asking for more not to fill our own overstuffed bellies, but for the ravaged little ones who cannot ask for help themselves.

For them, we politely ask, “Please Ellen, may the children have some more?”

Remember the Kids Childhood Cancer Awareness

 Ethan’s Army News

Join us for the 3rd Annual Ethan Jostad Softball Tournament this Saturday Sept 17th at the Cal Ripken Fields in White City on Hwy 140. Kristy Cook will be playing on Team Ethan helping the Ethan Jostad Foundation battle Childhood Cancer. Come get her autograph and watch the teams play ball. Food vendors, venue for the kids, fun games, Field Dedication & Balloon realease at Noon. Huge raffle with over 60 items. More details listed at www.ethansarmy.org on the event tab.

ethansarmy.com

www.ethansarmy.org


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