Grace: A Child's Intimate Journey Through Cancer and Recovery
Since my post yesterday, I am still scratching my head, trying to figure out why even highly educated people in our society are grossly unaware about childhood cancer. An even more important question surfaces next… how can we change this?
“It’s easy to say ‘It’s not my child, not my community, not my world, not my problem.’ Then there are those who see the need and respond. I CONSIDER THOSE PEOPLE MY HEROES”
~Fred Rogers
Could it be that there are people who are saying, “It’s not my child, not my community, not my world, not my problem”? No wonder it was always such a nice day in Mr. Roger’s neighborhood!
What I aim to accomplish with this little ol’ blog of mine is to let the world know that, even though I am technically still a child myself, I consider these children my children. Their problem is my problem. I see their tremendous need and I must respond. These incredible children fighting cancer are my heroes. I aim to keep telling people of their heroism.
Quote from the mom of a brave Warrior Princess:
“My warrior princess is kicking butt this morning! She guzzled down her first prep in record time-like less than 10 minutes flat! Her IV went in smoothly with little fuss, and now her second prep is going down-a little slower, but she’s working on it! Next up-CT scan-and she’s a pro!!!! ♥”
Quote from Patrick Doughtie, father of Tyler:
“Seven years ago, almost to the minute, I lost one of the most important persons in my life… my son, Tyler. As I reflect on how beautiful of a person he was, his gorgeous smile, his athleticism, his love for God, his family and people he met, I find myself smiling and thanking the Lord for the time that I did have him. I know he had a purpose here and he served the Lord well then was called home. So many things have changed since that day, some I regret but I find myself in a happy place today. I know that without going through what I did with my son, I wouldn’t be the person I am today. Though it was difficult getting to where I am, it’s been worth it knowing the lives he changed through his life and even through the movie God allowed me to share. I’m waiting for the day I’m able to join him, though I pray I have many more years upon the earth to do God’s will for my life!”
If you have seen the movie, Letters to God, you know Tyler’s story.
Each child’s story is unique. Each child’s story matters.
These are our children. This is our problem.
Who will choose to be heroes for them?
Hero opportunity:
Send emails to your Members of Congress to support specific legislation:
HR 3737 the Unlocking Lifesaving Treatments for Rare Diseases Act or ULTRA
S 606/HR 3059 the Creating Hope Act
Rare Disease Congressional Caucus
Each Child has a Story that Matters
Melinda Marchiano 
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