A Childhood Cancer Survivor Blogging about the World of Childhood Cancer

Grace: A Child’s Intimate Journey Through Cancer and Recovery

I bring you updates on Lane Goodwin today. From Lane’s mom:

 Prayers for Lane Goodwin

“Oh My heart is smiling! I got to see my sweet boy walk! He demanded to go to the bathroom so we picked him up & took him in the wheel chair. He then demanded to walk & did with assistance on 2 occasions!! He says he is in no pain & is currently only on seizure & anti-nausea meds. I noticed him just starring at the ceiling. I asked what he was doing & he said “God is showing me my past.” We continue to pray for a miracle & also continue to reassure him if God says it’s time to go home that it’s ok to go. We are completely in shock about how many people are praying, loving & following our sweet boy’s journey. Thumbs up for Lane is absolutely unbelievable!! We told Lane about all the people, professional athletes, news channels, schools, celebrity’s, radio stations across the country that are posting Thumbs up pictures & he smiled the biggest smile 🙂 Thank you to everyone for loving our family!”
 Lane’s spirit has touched many people– so many that Thumbs Up for Lane is becoming big news!

Story on MSNBC

http://www.msnbc.msn.com/id/49105190/ns/local_news-louisville_ky/t/viral-campaign-gives-boy-fighting-cancer-thumbs/#.UFutAY2uaSo
 The unimaginable hardship and gut-wrenching pain that these families endure has to stop. Our world lost a beautiful soul to childhood cancer recently, in Taylor Filorimo. “Pray for Tay” was the motto while she fought so bravely. Tay’s mom, Maria, continues the fight against childhood cancer with a new motto, “Live for Tay.”

 Maria Coleman Filorimo, Tay’s mom:

 “I promised you “My Voice” will never Go Away. YOUR GOLD Project will be known by All, We will bring Awareness, I LOVE YOU.”

 “It’s not just Riverdale.” Tay, “You are the destiny of change.”

 http://www.dnj.com/videonetwork/1828225843001/Maria-Filorimo-talks-about-her-daughter?fb_action_ids=4321123873658&fb_action_types=og.recommends&fb_ref=videoplayer&fb_source=aggregation&fb_aggregation_id=246965925417366

My friends at Alex’s Lemonade Stand Foundation asked me to share this link for childhood cancer patients. This is a very helpful tool—please check it out!

From Alex’s Lemonade Stand

 https://www.childhoodcancerjournal.com/

 I also want to share this link from Alex’s Lemonade Stand Foundation about the recent Childhood Cancer Symposium in Washington, D.C.

 News from the Childhood Cancer Symposium Via Alex’s Lemonade Stand Foundation

 http://www.alexslemonade.org/campaign/symposium-childhood-cancer/2012-resources

 One more bit of great news from Alex’s Lemonade Stand Foundation by way of PAC2:

“Our annual kudos to our friends at Alex’s Lemonade Stand Foundation for another round of Bridge & Springboard Grants. Bridge Grants are intended to keep scientist’s projects on track while they reapply for NIH funding to ensure novel childhood cancer research projects are not compromised. Springboard Grants are in response to cut-backs in NIH funding of new applications. The Springboard Grant is designed to jump-start new projects with high impact potential for childhood cancer research while other funding is sought.”

 http://www.alexslemonade.org/grants/bridge-grants

 While I am sharing, this WONDERFUL photo came to me via Twitter:

AnnaBell

pic.twitter.com/8EMXrBN

Dear God, I don’t want to puke.   Love, Bree

 Finally, I would like to share this…

The Truth 365 Day 7 Preview Laura Thrall President and CEO CureSearch

http://www.youtube.com/watch?v=rXil2qnMFkM&feature=youtu.be

Did I hear Laura Thrall say, “We are not competing?”

“We are not in competition, we are in cooperation.”

https://gracemelinda.com/2012/09/18/were-not-in-competition-were-in-co-operation/

(Is there an echo in here???!)

Aggregating for Efficiency…

I will call this the

Pediatric Cancer Research Revolution

September Childhood Cancer Awareness Month

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Comments on: "Pediatric Cancer Research Revolution" (1)

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