A Childhood Cancer Survivor Blogging about the World of Childhood Cancer

Posts tagged ‘Deliece Hofen’

Why I’m Rooting for the Kansas City Royals in World Series Game 7

 Braden's Hope Game 7 of the World Series is tonight!

I live on the Central Coast of California, three hours north of Los Angeles, and four hours south of San Francisco. You might guess that I would be routing for the Giants to win this evening, but this is not so. I admit I am a big Hunter Pence fan, but my heart and my cheers will be with the Royals tonight.

Why would a California girl not be cheering for her California team?

Besides being a big baseball fan my entire life, I am also a fan of “teams” founded to fight childhood cancer. One of my very favorite childhood cancer fighting “teams” is Braden’s Hope for Childhood Cancer. Melinda and I met Deliece Hofen, the founder of Braden’s Hope, four years ago. At the time, Deliece was in treatment for breast cancer while her son, Braden, was in treatment for Neuroblastoma.

Deliece is one of the brightest shining stars I have ever met on this Earth. Although she has had a mountain of challenges heaped upon her life, she has climbed to tremendous heights through her positive attitude, her beautiful faith, and her undying determination to help others. I love this woman.

Because of her tenacity, her persistence, and her utter brilliance, she has been able to help save her son’s life. Braden is a walking miracle. Deliece is a walking miracle herself!

Whatever could all of this have to do with the World Series tonight?

Braden’s Hope for Childhood Cancer is located in Kansas City. The Royals have always been huge supporters of this foundation. Before baseball games begin in Kansas City, the enormous screen with a crown sports a photo of Braden and George Brett laughing together while offering a Braden’s Hope Calendar for sale. The calendar has photos of “Hope Heroes” with Royals players. All proceeds go to helping Braden’s Hope for Childhood Cancer fund vital research for cures for our kids.

I love the Royals for their dedication to helping their local childhood cancer foundation, Braden’s Hope for Childhood Cancer. Being a major league baseball player comes with many perks. It is refreshing to see these players use their position of sports celebrity to spread human kindness into the world of suffering children. It’s the right thing to do.

What could make me change my mind? Hmmmm….

Maybe the Giants can begin supporting Unravel Pediatric Cancer, one of their local childhood cancer foundations started by another “mama” I love, Libby Kranz.

You see, I love watching baseball, but I love witnessing big hearts in action for kids with cancer even more.

Go Royals!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

 Braden and George

Braden Hofen and George Brett

 Shared from: https://www.facebook.com/photo.php?fbid=10152654749620970&set=pcb.10152654758315970&type=1&theater

Guest Blogger: Lee Marchiano

 

 

 

 

A Hero’s Welcome for Zach Hofen

 

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Zach Hofen is ten years old. Melinda and I first met Zach three years ago when we traveled to Kansas City, Kansas to participate in Braden’s Run, a fundraiser for Braden’s Hope Childhood Cancer Foundation. Braden is Zach’s younger brother. Braden was diagnosed with Neuroblastoma in December of 2007, the exact same month Melinda was diagnosed with cancer. Unlike Melinda, Braden’s fight against cancer continues to this day.
From Braden’s Caringbridge site:
“Braden was admitted to Children’s Mercy on Friday, December 28, 2007 after a visit to the ER for abdominal pain. A chest x-ray revealed a large white shadow across most of the right side of his chest and extending partially across the left side. A CT scan determined that it was a solid mass, which doctors suspect is a Neuroblastoma, a rare tumor found in infancy and early childhood.”
Braden has endured unimaginable pain and suffering, yet he continues to be an amazingly bright- spirited boy. Without any doubt, Braden’s family has been an enormous factor in his ability to stay positive and stay alive. His parents, Deliece and Brian, are more educated about Braden’s illness than many doctors will ever be. The Hofens have struggled through piles and piles of “bad stuff,” yet, incredibly, this is a family who gives other families hope. Deliece posts beautifully written pieces of her heart about Braden’s illness on Caringbridge and also in her blog, No! This is SERIOUSLY My Life! Amid all the chaos of treatment, they made time to found Braden’s Hope for Childhood Cancer, to be sure they would make a difference in the lives of many other children.
And this brings us to our hero, Zach. We don’t often think of the effects or the challenges of siblings of those battling childhood cancer. Most of their parents’ time and attention is gobbled up by caregiving. The household has illness living there; there are no “normal” days, yet they are still “normal.” They have constant terror from witnessing their brother or sister suffer and constant fear that death will take them away. In the case of this courageous sibling, Zach has made a hero’s choice and he has completed a hero’s deed. Zach is a bone marrow donor, and his recipient is his brother, Braden. Not only has Zach supported his brother and family with his wit and exuberant personality through the past difficult years, but he has given LIFE to Braden. Deliece says, “Zach is hilarious and has many “Zachisms”. He keeps us laughing every day! “
Zach and his Dad, Brian, return to their home from Children’s Hospital of Philadelphia in two days, on Friday, April 4. Family friends are planning a Hero’s Welcome for Zach! If you live anywhere near Olathe, Kansas, or if you are able to get there somehow, please, please give Zach the warmest, most sincere and grateful welcome home there could ever be!

Big Brother, Zach! You are a Hero!

Big Brother, Zach!
You are a Hero!

Details are in these links!

https://www.facebook.com/BradensArmy
http://www.caringbridge.org/visit/bradenh/journal/view/id/533c2331ca16b42c0269d871
https://www.facebook.com/deliece.hofen/posts/10152337426025970

 

 

Childhood Cancer Advocacy Momentum — Connect Connect Connect

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My name is Lee, and I am Melinda’s mom. As a college sophomore, Melinda has responsibilities that make time for blogging difficult. Sleep is a rarity. The world of childhood cancer still goes on, which means this blog about childhood cancer needs to continue. Melinda has invited me to be her guest blogger until Pepperdine lets out for the summer.

Since the time of her treatment, six years ago now, we have worked together as a “team” to help children with cancer. Having a strong focus to help others was instrumental in Melinda’s physical and emotional recovery from cancer, and I have no doubt it has helped me as well. There is something indescribable about helping others when your very own self is falling apart. Isn’t it true we feel as humans that we need to have our act together before we can help anyone else; we need to have all of our “ducks in a row” before we have “extra” to output for others. The plain truth is, we are often more compassionate, more understanding, and more helpful when we are broken, mangled, or bent. Any parent whose child has fought childhood cancer falls into this broken, mangled, or bent category. I am no different. My heart will never recover from the terror of Melinda’s suffering. But… I will rejoice every moment of every day for the rest of my life that she has come through the suffering. I intend to take this mangled heart of mine and form its love into a huge, fierce fire– a fire that will light the world of childhood cancer.

The childhood cancer community is a community no one chooses or dreams of joining. We are “drafted.” Not long after I was drafted, I realized I needed to “Enlist.” My love for children is so deep, so great, so overflowing, that I have no choice but to help these children in every way I can. I will admit there are kid parts of me that have never grown up. I have been known– on many occasions– to randomly and suddenly break into a skip. This is just one thing I love about kids; they teach us joy. They teach us about what we have discarded and left behind in our adult lives. When that adult reserve kicks in and tells me not to skip next time, I plan on inviting it to join me!

I want to express my thanks to moms and dads in the childhood cancer community for sharing your daily lives through social media. I feel I know so many of you, just from following. You have given me a better understanding of the problems, pressures, and battles you face each moment of each day. I want you to know how much I care. I want you to know how hard I will work for change. I want you to know you are not alone.

Finally, I am excited about the momentum that is building. I am honored to know many of you who work your tails off so that there can be newly funded research for less toxic treatments. I am amazed by the courage of so many of you who have lost your children to cancer that now run foundations to help the kids. After five years of my personal advocacy, it’s clear to me that the tides are beginning to turn. Four years ago, a dear lady named Christine began a campaign intended to raise awareness of childhood cancer. She was inspired by her friend, Deliece Hofen and her son, Braden, who is currently undergoing a bone marrow transplant. The campaign aimed at getting Oprah’s attention for a segment on her show and was called, “Oprah, Please Do A Show On Childhood Cancer.” Within no time, the childhood cancer community came together with a loud voice. Unfortunately, Oprah did not answer our pleas to help raise awareness. She had never done a show about childhood cancer and never did one before the show went off the air.

Recently, the outcome of our cohesiveness did bring about something extraordinary. “Under intense pressure” from social media and grassroots, Josh Hardy was able to get the medicine he needed, but had been denied. Another beacon of hope for progress is the Gabriella Miller Kids First Research Act. Because we are connected and engaged with each other in our community, we are beginning to achieve some success. This means we have opportunities to save kid’s lives! This means we can build even more momentum for avenues of change.

Josh Hardy

http://video.foxnews.com/v/3329179339001/7-year-old-cancer-patient-receives-new-drug/#sp=show-clips

The Gabriella Miller Kids First Research Act

http://www.foxnews.com/politics/2014/03/11/congress-passes-bill-to-support-childhood-cancer-research/

Yes, let’s connect, connect, connect so we can achieve as much as we possibly can. Childhood cancer is the #1 cause of death by disease in our country. Seven children die from cancer every day here in the United States and over 40,000 children are currently in treatment. Many of these children fight for years. Many of these children suffer even more from the effects of their treatment than they do from cancer.

To all my fellow onc-parents, I love you and your children.

“Charge!!!!”

Please leave your contact on this page so we can all connect.

Facebook: https://www.facebook.com/pages/Grace-A-Childs-Intimate-Journey-Through-Cancer-and-Recovery/149423578414076?ref=hl

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