A Childhood Cancer Survivor Blogging about the World of Childhood Cancer

Posts tagged ‘St. Baldrick’s Foundation’

I’ll take it “Raw”

 

Grace: A Child's Intimate Journey Through Cancer and Recovery

I received a call last week from a nearby cancer center, telling me of a patient who read my book who wanted to speak with me. This patient admitted that the woman at the cancer center had warned her about reading my book; she was concerned because the woman is having a difficult time right now in her own battle with cancer. But someone had recommended my book to this patient, so she chose to check it out—even though the woman at the cancer center described my book as “Raw.”

 

I have rolled this adjective around in my head, and I have concluded it is an accurate description. In fact, this was my goal, complete honesty. I didn’t want to sauté, fry, or barbecue my cancer story, nor did I want to coat it with goopy, sweet frosting. I wanted to tell the truth.

I guess truth is “Raw.”

I know sometimes people are uncomfortable with the truth. When we began working with Greenleaf Book Group a year ago to create the second edition of my book, they recommended that I end it at the point where I finished chemo. My mom composed a four-page rebuttal, detailing why cutting off the recovery part of my story would be like “chopping off a body part.” (Guess who won this debate?)

I knew I had to include my recovery if I wanted my story to be truthful. The truth was, for me, my cancer battle was not over when treatment ended. It was the beginning of a whole set of other problems that turned out to be the most fierce battle of all to get well. I want more people to know that this is truth for many children. Not only do I want people to know this truth, but I want people to understand that, after cancer treatments, children are like “giant, open, walking wounds,” with a huge job of recovery before them.

I understand why people would not want to hear the truth. I understand why they would want to conceal it and hide it under a rock. This doesn’t work for me. I imagine how much easier it would be for children who are in recovery if we all understood what they are feeling physically, mentally, and emotionally.

Even though it may be tough to chew and hard to digest, I believe in truth.

To finish the story about the woman from the cancer center who read my book… she contacted me and told me it was “just what she needed.”

Some people do like truth =)

I wonder if anyone will make me put a Warning Label on the cover of Grace: A Child’s Intimate Journey Through Cancer and Recovery?

Warning! Truth may be hazardous!


Please support Tom Nunn and Jodie Nunn in their efforts to raise money for St. Baldrick’s. Please give today in memory of their son, Max, who would have turned eight years old today.

Thinking of Max today... on his birthday


 

 

 

Who is Coming to the Rescue?

Grace: A Child's Intimate Journey Through Cancer and Recovery

When a disaster strikes, The Red Cross and other emergency services come to the aid of the victims of the disaster… regardless of where that disaster occurs in the world. This is the appropriate response when we see fellow humans suffering from unexpected catastrophes. How can we, as compassionate humans, stand on the sidelines and do nothing?

What would happen if our society truly understood the catastrophe of childhood cancer? What would happen if all of us could not turn away from the truth, the facts? What would happen if those with decision- making power in the media decided it was time to report about the Monster killing our children?

Awareness. That is what would happen. Awareness.

I am wondering if I need to get out that triple beam balance I spoke of a few days ago– you know– the one I was joking about whacking someone over the head with in Chemistry?

There are people who are “in the trenches” of the childhood cancer battlefield every single day. These people did not choose to be in the club they belong to. They didn’t have to get whacked over the head with a triple beam balance to leap into action. These are people who have lost their child to cancer, and they vow to make a difference so that other children do not have to suffer like their own child did.

These people amaze me. They inspire me. They blow my ever-loving mind. They open my heart.

How do they go on after losing their child to cancer? How do they turn all of that grief into HOPE for others? How is it that those who have suffered through the catastrophe are the ones who are showing up to help others at future disasters?

Can you imagine the world if the only people who showed up to help when a disaster strikes are people who have been through the same disaster?

It is time, right now, for each and every single one of us to join in the battle against childhood cancer. Don’t make our wounded warriors also be the lone rescuers. Please act.

Today, I give you two options. Bob Piniewski and Jodie Nunn are both shaving their heads to raise money for St. Baldrick’s. Please consider a donation to their efforts. Bob and Jodie are “Wounded Warriors” motivating me to do all I can.

“Do not merely listen to the word, and so deceive yourselves. Do what it says. Anyone who listens to the word but does not do what it says is like someone who looks at his face in a mirror and, after looking at himself, goes away and immediately forgets what he looks like. But whoever looks intently into the perfect law that gives freedom, and continues in it—not forgetting what they have heard, but doing it—they will be blessed in what they do.”

James 1:22-25

Facebook: Grace: A Child’s Intimate Journey Through Cancer and Recovery

Jodie Nunn will shave her head to raise money for St. Baldrick's. Would you like to donate in memory of Max?

Please continue your prayers for Breanna and for Crista…

Waiting to hear from Make-A-Wish

I haven’t heard a word from Make-A-Wish… not even one word. I have decided I won’t analyze things, or stress about what this means or doesn’t mean. What is meant to happen will happen. Okay, I will admit that I am a teeeeeeeeeensy weeeeeeeensy bit encouraged because I did not receive an immediate, “NO!!!!!!!!!!!!!!” As each day goes by, I also admit that I imagine myself as a fly on the wall at HARPO Studios as Oprah’s producers scratch their heads and nod at one another in agreement that a show on childhood cancer would be AMAZING!

Okay… imagination is rolling…

After a information-filled Oprah Show that includes CureSearch, Children’s Oncology Group, St. Baldrick’s, and so much more, then Oprah can announce a great big surprise! Oh my gosh, I can see it now– I can really see it!

Oprah announces that her Angel Network is going to build the BIGGEST, BADDEST (yes, BADDEST!) most utterly powerful Childhood Cancer War Machine ever imagined by humankind! She tells her audience how her heart has been moved to make a huge difference in the lives of children with cancer in our country and throughout the world. Oprah goes on to tell all of us how material things are “of this world,” but helping find a cure for childhood cancer is permanent, lasting, and the most worthwhile of all of her missions here on Earth.

It is, in fact, the mission of a true angel. I am still wishing, still hoping, still praying… for Oprah to be the Angel I am seeking.

Oprah Please Do A Show On Childhood Cancer - Our Kids Need Your Help

Will Oprah Respond to over 10,000 Requests?

As of today, there are over 10,000 “likes” on the newly created Facebook  page asking Oprah to do a show on childhood cancer.

http://www.facebook.com/pages/Oprah-Please-Do-A-Show-On-Childhood-Cancer-Our-Kids-Need-Your-Help/156632377680799?ref=ts

If you would, please “like” the page as well. Please take a moment to browse the stories of some incredibly brave children. There are also links on the page to organizations who offer help for pediatric cancer research. St. Baldrick’s Foundation is the world’s largest volunteer-driven fundraising program for childhood cancer research. I understand that there will be some moms appearing on Stand up to Cancer tonight who shaved their heads to raise money for St. Baldricks’s and childhood cancer research.

Why all this talk about raising awareness and research? Because a cure is within our reach. If a cure is within our reach, we need to start reaching now– and stretch as far as we possibly can! Let’s grab the cure and save children’s lives!