A Childhood Cancer Survivor Blogging about the World of Childhood Cancer

Posts tagged ‘Jaynie’

Jaynie, Jaynie, Jaynie!

What a great day yesterday! Mom and I left home and headed south for Los Angeles early in the morning. The weather on the Central Coast of California was spectacular– and that it not coming close to describing the gloriousness of the day! As we traveled through the never-ending vineyards, the sun splashed its morning yawn upon the leafy rows and they glowed a brilliant golden hue. As we came over the top of the Cachuma Pass into Santa Barbara, we could see all of the Channel Islands scattered throughout the shiny, sparkly Pacific Ocean. Yes, it just took our breath away over and over again.

Then, reality set in as we closed in on Los Angeles. I’m not a city fan, and I made this comment to my mom when describing the day in LA yesterday, “God did the best He could with LA!” Having always lived in a small town, I get a bit claustrophobic in cities:) We found our way through the ever-present Los Angeles traffic, over the ever-glorious Sepulveda Pass and got off at Wilshire Blvd.

UCLA Medical Center was quite impressive. After being there for just a short time, my mom and I decided we were quite comfortable there… funny place to feel “comfortable!” Being there makes me think even more about pursuing a career in the medical field. Stanford, did you hear that?!

And now, on to the very most important part of our journey to Los Angeles… Jaynie! You will laugh when I tell you that everyone– including Jaynie– wanted to prepare me for what I was going to see when I walked into Jaynie’s room. I was prepared for tubes, lines running everywhere, and a ghostly white Jaynie countenance.

Hee hee!!!!!!!!!!! What I got when I walked into her room, was Jaynie sitting up in a chair with a huge grin on her face that has more color in it now than it has had in years!  Her medical team not only removed the scar tissue that was causing her extreme difficulty, but also, they replaced Jaynie’s valve with a much bigger one. And yes, I did get to walk with Jaynie and her IV pole, making sure the back of her gown was not flapping in the wind– just like she did for me. I always tell people, “That Jaynie, she always has my back!” I can’t tell you how much it meant for me to do the same for her.

Jaynie at UCLA after Heart Surgery

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My Buddy Jaynie

I don’t even know where to begin today telling you everything I want to share! I read the results of a study that just came out– scientists have found three new gene variations in the development of Hodgkin lymphoma. When I hear about studies like this one, it gives me great hope for the advancement of knowledge and treatment of all types of cancer in the future.

http://www.foxnews.com/health/2010/11/01/study-finds-gene-links-common-lymphoma-cancer/

And Jaynie!!!!!!!!!!!!

Thank you so much for your prayers for Jaynie. Her surgery went very well, and my mom and I will be traveling to UCLA tomorrow. I told Jaynie that I am going to play “Dancing Queen” on my I-pod and when she hears the music coming down the hall, she’ll know it’s me:) And then… I am going to hold the back of Jaynie’s gown closed and pull her IV alongside us as we “dance” down the halls… just like Jaynie did for me at Cottage Hospital!!!!!!!!!! I loved joking with Jaynie at the time about how she “always had my back!” It’s going to be very strange to have Jaynie be the one in the size XXXXXL diamond-print hospital gown, but at the same time, so very familiar.

Dance Celebration Down the Halls of Cottage

Love you Jaynie! Thank you God for watching over her and thank you to everyone for your prayers for Jaynie’s complete recovery.

Prayers for Jaynie

Tomorrow, my Child Life Specialist who has become a dear friend is having heart surgery. I am asking everyone I know to please pray for her and for her doctors and for her doggies who will be lonely without her.

Photo from Grace: A Child’s Intimate Journey Through Cancer and Recovery:

 

 

Jaynie, Danny and Antonio before my surgery

 

Barnes & Noble and Grace: A Child’s Intimate Journey Through Cancer and Recovery

I am very excited about my first bookstore book signing tomorrow at Barnes & Noble on State Street in Santa Barbara.

http://store-locator.barnesandnoble.com/event/3065003

One of the things I am most looking forward to is seeing my “Santa Barbara friends”!!!!!!!!!!!!!!!!!! My mom talked with Jaynie, my Child Life Specialist, this past week, and she is going to come– and I think she might even bring Rowan!

Who is Rowan?

Rowan is a 122 pound Leonberger and incredibly amazing therapy dog:) I can’t begin to tell you how much healing that Rowan brought to me as the chemo dripped into me.

I love Rowan!

It will be so much fun to see everyone. I hear that dearly loved Dr. Dan will be coming by with his family and guess who else said he will come by?

My mentor, who, without his splendid information, I would not be signing anything tomorrow– or seeing any of the people I love.

Thanks Matt.

Also, without my amazing, loved bunches and bunches, medical staff, there would not only be no book, there would be no Melinda:)

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