A Childhood Cancer Survivor Blogging about the World of Childhood Cancer

Posts tagged ‘Khadi’

Melt My Heart

Grace: A Child's Intimate Journey Through Cancer and Recovery

“One of the hardest things about being a cancer survivor is realizing you don’t have to be in pain…don’t have to just accept and DO because you have to…..it’s realizing you actually have a choice now…”

While I was in Boston on the Children’s Hospital Hope Tour, I got to meet someone I have come to admire… someone close to my age… someone who not only advocates for children with cancer, but someone who is studying to become a pediatric oncologist. This beautiful person’s name is Khadi and Mom and I met her at Boston Children’s Hospital. I learned about Khadi and the non-profit organization she started called Hope for Kids Cancer through Facebook.

I was happy to discover that Khadi was up for adventure as we wandered the basement halls and past loading docks, looking for their Family Resource Center. After asking several locals if they would be our GPS, we not only found it, but we had the chance to meet one of the nicest people we met on our trip, Kate Simonelli.  We left a book with her and snapped a couple of photos before we left for more discoveries.

With Kate and Khadi at Boston Children's Hospital

We were able to find Dana Farber Resource Center, thanks to a kind police officer who pointed us in the right direction (you can see we were directionally challenged!) I did not know this story at the time, but learned of it a few nights later from the emergency room staff at Lawrence Memorial Hospital…

When Dana Farber was constructing a new building across the street from their old building, the construction workers could see childhood cancer patients through the windows of the old building. A game began where children would hold up signs with their names on them and construction workers would write the child’s name in spray paint on the steel construction beams of the new building. Sometimes, children would hold up signs that read, “Go Red Sox!” Whatever was on their signs became permanently written on the frame of the new building. Workers could be seen wiping away their tears as they would finish their name spray painting.



Melt my heart…

What in the World? Simple.

Grace: A Child's Intimate Journey Through Cancer and Recovery

I think about what in the world I am supposed to be doing in this world.

The answer comes to me as plain and simple:

I am here to give glory and honor to God by loving and blessing others.

In this age where life is becoming more and more complex, I suggest we simplify… beginning with, “God is Love,” and “Love is God.”

Our world would have no reason to fight for “Religious Reasons.” There would be no such thing as “believing in God or not believing in God,” because we all have love inside us.


God is love.

1 John 4:8

Whoever does not love does not know God, because God is love.


So, Miss Melinda Philosopher of the Day, what are you going to do with your love?

I will begin by getting on my knees to give thanks for all the love inside me and for every single person who has given me love. I promise to not waste it; I promise to give it away.

Khadi and I made a friend outside Boston Children's Hospital!


I see September on the horizon. My “supposed to be doing” is obvious.

I need to tell everyone that September is Childhood Cancer Awareness Month and get every corporation, business, organization and individual “On Board” for raising money for a cure for pediatric cancer.



Have you signed this petition?


Braden’s Hope Foundation asks us to keep Harley Combs in our thoughts and prayers.






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