A Childhood Cancer Survivor Blogging about the World of Childhood Cancer

Posts tagged ‘Layla Grace Foundation’

Layla Love-Magnet

Grace: A Child's Intimate Journey Through Cancer and Recovery

When you pass through the waters,
I will be with you;
and when you pass through the rivers,
they will not sweep over you.
When you walk through the fire,
you will not be burned;
the flames will not set you ablaze.”

~ Isaiah 43:2

One year ago, a precious two year-old girl named Layla Grace earned her angel wings. Now, the Layla Grace Foundation works for discoveries of new treatments for children with high-risk cancer. Their goal is to “empower” parents with tools to become advocates for their children. At the same time, they work to raise public awareness about their cause.

There is a part of me that loves the way people say children with cancer “earn their angel wings” when they pass. I love the word “earn,” because that is exactly what they have done—they have earned the wings of angels. The part of me that can’t stand it is the part of me that knows how hard they have fought to earn those wings.

Dear Baby Layla has touched the lives of people all over the world. Even now, as she flies free with her angel wings, she continues to inspire people with her courage. Layla is a like a love-magnet, with a magnetic love force that draws people to her… even now.

I marvel how a two year-old girl can truly make a difference in the lives of others.

I am blowing you a great big kiss Layla…. MMMMMM—WA!

To everyone at Layla Grace Foundation, I send my sincere thanks for turning your love for Layla into help and hope for children with cancer.


Layla continues her legacy

Courage Despite Grief


Grace: A Child's Intimate Journey Through Cancer and Recovery

Dear Oprah,

In my daily letter on this day, I ask you once again to please do a show on childhood cancer. I have read each of the stories posted on the Oprah, Please Do A Show On Childhood Cancer Facebook page since it was born in early September last year. I don’t know how anyone can read the stories and not take action in some way. It seems our society has become lazy, self-centered, and selfish. We wait for others to do what we can do ourselves. We busily pursue our own agendas… turning away from those who desperately need our help.

I know people who have not turned away from the daunting challenge of working toward a cure for childhood cancer. These people are the opposite of lazy, the opposite of selfish. The people I am speaking of are heroes to children with cancer—they are parents who have lost their own child to cancer and still fight on for others. They have created organizations that raise money for research and also help families through the financial/emotional struggles of childhood cancer. I would LOVE to see you feature these heroes on your show. Funny, after I wrote that last sentence, I heard a voice telling me what these heroes would say in response.

They would say that their heroes are the children fighting cancer.

The truth is, Oprah, children fighting cancer need tons of support—medically, physically, emotionally, and spiritually. I don’t know what we would do without the individuals who have created Layla Grace Foundation, People Against Childhood Cancer, Alexa Nawrocki  Pediatric Cancer Foundation, Alex’s Lemonade Stand, Kids V Cancer, Children’s Cancer Association,  Bear Necessities Pediatric Cancer Foundation, and I know there are more. I cannot express how much I admire these people, not only for what they are doing for children with cancer, but for their courage in taking huge leaps to assist children with cancer in the midst of their grief.


Courage doesn’t always roar. Sometimes courage is the little voice at the end of the day that says I’ll try again tomorrow. ~Mary Anne Radmacher

 Be back again tomorrow,



AJ and his Dad, Bob... one of my heroes




Alicia Keyes Tweets for Cancer Kids

The very first thing I want to tell you about today is how the Facebook site requesting Oprah to have a show about childhood cancer has continued to mushroom in growth. One strategy the page originators are using now is to ask celebrities to tweet about the page and ask their followers to “Like” the page too.

I have always loved Alicia Keyes music. Now, I love Alicia Keyes– she helped to fuel this movement by opening her heart and using technology to make good things happen. Please go out and buy her music!!!!!!!!!!!!!!!!!!!!!!!!!!

For all you NASCAR fans out there (brother Nicholas, are you listening?) this is what Jimmie Johnson’s foundation is doing for children with cancer:


And just one more link for you– telling about an amazing little girl named Layla Grace who lost her battle with cancer. Her tremendous spirit shines through this foundation to honor her gift of inspiration to all of us:


We have so much to do, and so many reasons to do it.

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