A Childhood Cancer Survivor Blogging about the World of Childhood Cancer

Posts tagged ‘Linda’

Make-A-Wish Makes My Wish Live On

Grace: A Child’s Intimate Journey Through Cancer and Recovery

“The crest and crowning of all good,

Life’s final star, is Brotherhood.”

~Edwin Markham

My Make-A-Wish Hope Tour time in Phoenix ended late in the afternoon, and then, Mom and I hopped into HerbertTheHopeMobile and headed toward California. 

California on the Hope Tour– what’s up with the trash???!

We encountered a brief display of nature when what I call a Mini-Haboob (Wikipedia definition) swept over the highway we were driving on. Tumbleweeds and twigs flew through the air as we found ourselves unable to see the road in front of us. The “I Respect Nature” display did not last long in its vigor, and soon, we were able to continue on, with a significant dust storm flying all around us.

On our way out of Phoenix, Mini- Haboob

By the time we reached Hyatt Westlake Plaza, we were two bleary-eyed Hope Tour-ers! Mom and I awakened the next morning to a surprise that opened our bleary eyes… it was a message from Linda… the Linda who planned the entire Hope Tour. She was down in the lobby!

Linda, my Make-A-Wish Angel

Linda has been incredible, amazing, and all other great adjectives rolled into one. She understood how I wanted to make my wish bless the children who are fighting cancer, and how I wanted my wish to raise awareness that will bring funding for pediatric cancer research. Linda, from Tri-Counties Make-A-Wish, worked with other chapters, including National, to make my wish come true. Through their co-operation, Make-A-Wish has not only made my wish come true, but they have made it possible for my wish to live on.  Linda, my very own personal Make-A-Wish Angel, I thank you. I know you love the children just as I do, and that’s why you were able to do what you did—pretty much the impossible! Mom and I thank you for our time together that enriched our lives; may it spill over and bless others. You will always be an Angel in my life.

After meeting Linda in the hotel lobby, we left for Children’s Hospital Los Angeles. Thank you to Marlen Bugarin, for meeting us. Marlen took us on a tour of the hospital, and I also had a time to meet Dr. Stuart E. Siegel, Director Head, Division of Hematology-Oncology, Professor of Pediatrics. Make-A-Wish far exceeded my wish by planning meetings with many oncologists and researchers on my Hope Tour.  This was a wonderful surprise! The opportunity to meet with doctors and researchers goes even beyond inspiring me to do what they do. By meeting, this opportunity opens the doors for all of us to work together for common good for children fighting cancer. Whenever we join with others who have the same passion, the good we can do exceeds the sum of the parts. It’s like vinegar and baking soda combined… bubbles!

With Dr. Stuart Siegel at Children’s Hospital Los Angeles

One of the things I will remember most about my visit to CHLA, besides meeting Dr. Siegel, are the warriors I met that day. I met several teenage warriors who will always have a piece of my heart. I talked with Austin and his mom. Austin and I have a lot in common. He plays football, and we spoke of how hard it is to not be able to do what you love and how—at the same time—that love for what you love to do is what gives you the push to heal. I think of Austin every day… and I check in on his page to see how he is doing.

Austin!

Someone else I will always remember is Henry. Henry told me an unbelievable story about his life and about what he has overcome, and how cancer has actually helped him to be who he needs to be. I won’t give the details, because, I have encouraged him to tell his own story!

Henry!

On our way back to our hotel, after visiting the hospital, we missed the onramp to the freeway. As we drove down a street to turn around, we noticed a dog tied up outside a motor-home that looked like it didn’t “motor” anymore. The dog’s bones were sticking out, as if the poor baby was starving. Mom pulled over HerbertTheHopeMobile, looked into the back, and she pulled out something for the dog to eat. She got out, walked over to those who were in the motor-home, and asked if it would be okay to feed the dog.

I love my mom.

My Make-A-Wish Hope Tour created many acts of love… this is why my wish lives on.

California in the Distance on the Hope Tour

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Discovering the World — Make-A-Wish Hope Tour at the Grand Canyon

Grace: A Child’s Intimate Journey Through Cancer and Recovery

“Your work is to discover your world and then with all your heart give yourself to it.”


– Buddha

 

Without a doubt, one of the great joys of my Make-A-Wish Hope Tour was the opportunity I had to discover the world. I discovered more about the world of childhood cancer, about the patients, those who take care of them, about childhood cancer research, and about our healthcare facilities. I discovered new friends. Traveling by car, and seeing this country we live in, was a breathtaking education in itself! When Linda, my INCREDIBLE Make-A-Wish coordinator, told us that they would have to “put” us somewhere between Salt Lake City and Phoenix over a weekend, I had no clue that the place she would “put” us would be the Grand Canyon!

After a very long day of driving through sight after sight that drew our gasps, we approached the Eastern entrance of the Grand Canyon near the time of sunset. We had been driving through Navajo Land, and the circular huts we kept seeing had piqued my interest enough to Google them. (Yes, Google them!)

Make-A-Wish Hope Tour at The Grand Canyon

We pulled over at the very first look-out point after we entered the park, Desert View. No words or pictures, or anything Earthly could have prepared me for my first view of the Canyon. Rather than try unsuccessfully to re-capture my thoughts and feelings at the time…

Day 21 Video

Grand Canyon on the Hope Tour

We cried. Mom and I cried. We cried tears of joy for this place of unspeakable beauty before us. We cried tears of joy for life. We cried tears of joy for the love we have for each other. God’s presence and His love were overwhelming. Overwhelming.

Thank you again, Make-A-Wish, for giving me the opportunity to discover the world. I promise to give all my heart to it.

Thank you to Grand Canyon Squire Inn for our wonderful stay and for your kind support of Make-A-Wish!

From PA2 Events for September National Childhood Cancer Awareness Month...

http://curechildhoodcancer.ning.com/page/pac2-september-2012-national-childhood-cancer-awareness-event-cal?xg_source=msg_mes_network

 

 

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