A Childhood Cancer Survivor Blogging about the World of Childhood Cancer

Posts tagged ‘National Children’s Cancer Society’

Time to Take Action– 2014 Childhood Cancer Action Days

2014 Childhood Cancer Action Days

Registration opened today for the 2014 Childhood Cancer Action Days in Washington, DC. The Alliance for Childhood Cancer will be the host of this two-day event that will encompass advocacy training and Capitol Hill meetings with Congressional Representatives. The training will take place at the American Society of Clinical Oncology (ASCO) in Old Town Alexandria, VA. Childhood Cancer Action Days not only educate people who want to learn more about how they can institute change, but they provide everyone in the childhood cancer community an opportunity to share their concerns about current issues before Congress.

Schedule

Monday, June 23, 10:00 am- 6:30 pm / Training and issues presentation, by Soapbox

Tuesday, June 24, 8:00 am- 5:00 pm / Kick-off and Hill visits

The Alliance for Childhood Cancer is a uniting force in the childhood cancer community. The following is a list of members in their organization from their website.

American Academy of Pediatrics , American Cancer Society , American Cancer Society Cancer Action Network , American Childhood Cancer Organization , American Society of Clinical Oncology , American Society of Pediatric Hematology/Oncology , Association of Pediatric Hematology-Oncology Nurses , Association of Pediatric Oncology Social Workers , B+ Foundation , Children’s Brain Tumor Foundation , Children’s Cause for Cancer Advocacy , Children’s Oncology Group , CureSearch for Children’s Cancer , Leukemia & Lymphoma Society , National Children’s Cancer Society , Pediatric Brain Tumor Foundation , Sarcoma Foundation of America , Society of Pediatric Psychology , St. Baldrick’s Foundation

Melinda and I just registered. I encourage others who share our passion to make a change in the world of childhood cancer to do the same. You don’t need to be a member of any of these organizations to register; parents, survivors, and all advocates are welcome.

We need research. We need less toxic treatments. We need access to medicines. We need supplies of medicine that don’t run out. And the list goes on…

This is the registration link!

http://www.allianceforchildhoodcancer.org/events?eventId=855348&EventViewMode=EventDetails

H.R. 2607: Caroline Pryce Walker Conquer Childhood Cancer Reauthorization Act

https://www.govtrack.us/congress/bills/113/hr2607

H.R. 2019: Gabriella Miller Kids First Research Act

https://www.govtrack.us/congress/bills/113/hr2019

We need to act and do much, much more to end the suffering of our children. Please join Melinda and many others who are devoting their lives to make sure there is change for the better.

Bear and Chemo Bag

Guest Blogger: Lee Marchiano

 

Advertisements

Beyond the Cure, Beyond those Dreams

 

 

The National Children’s Cancer Society

“We serve as a financial, emotional, and educational resource for families that can’t make ends meet when their child is diagnosed with cancer. Since our inception, we’ve provided more than $57 million in direct financial assistance to more than 33,000 children nationwide, and we work closely with over 300 hospitals and pediatric oncology units throughout the US.”

 

There is no way I can count the times in these past months of my freshman year at Pepperdine that I look around, take in where I am, and then gasp– realizing how blessed I am. For anyone who has visited the campus, you know there are many long, steep staircases for students to navigate from one place to another– as Pepperdine is built into the Malibu hillside that looks out over the Pacific Ocean. There was a time, not so long ago, that I dreamed of being strong enough to just walk across my room. This not-so-distant memory creates a strong context for the world I now see around me. Being healthy enough to notice what is around me, being healthy enough to take part in the world around me, and being healthy enough to use my life to maybe help someone else’s is “Beyond” my wildest dreams of those days I was flattened on my bed.

Now, outside my dorm room, there is a view that… well… the vast, blue, expansive Pacific!  I love the students, dancers, professors, and the atmosphere here!  I love learning here. Before I began attending Pepperdine, I never even imagined a college where I would be able to combine my curiosity to learn Bio-Chemistry, my passionate desire to continue to DANCE, and my deep need to grow in my faith. I have all of that; I am so happy here I could scream… or cry… or both!

Without scholarships, my education at Pepperdine would be out of my reach. I am thankful to Pepperdine University, and also to one other organization that has helped me tremendously. The organization I am speaking of is the National Children’s Cancer Society and their Beyond the Cure Scholarship Program. I am very, very thankful to be a recipient of a 2013-2014 Beyond the Cure Scholarship.

http://www.beyondthecure.org/scholarships-2012-2013

I want to let my fellow student/cancer survivors know that the 2013-2014 Beyond the Cure Scholarship Program is now accepting applications. If you are younger than 25 and have been accepted to an accredited educational institution, and you are a childhood cancer survivor (diagnosed before age 18,) then I encourage you to apply.

Application

http://www.thenccs.org/Document.Doc?&id=219

Renewal Application

http://www.thenccs.org/Document.Doc?&id=220

Beyond the Cure Scholarship Information

http://www.beyondthecure.org/scholarships

NCCS

“The Beyond the Cure Scholarship Program awards college scholarships to childhood cancer survivors who have demonstrated the ability to overcome the difficult challenges of cancer with determination and motivation. A total of $125,000 was awarded to 38 childhood cancer survivors for the 2012-2013 academic year.”

Application deadline is April 1, 2013

I am sending this off with great love and respect for my fellow survivors of childhood cancer. May you receive all the help and support that you need to reach for your wildest dreams…

… and don’t be afraid to reach even further… “Beyond” those dreams!

Go Waves!

Go Waves!

Tag Cloud