A Childhood Cancer Survivor Blogging about the World of Childhood Cancer

Posts tagged ‘American Cancer Society’

Time to Take Action– 2014 Childhood Cancer Action Days

2014 Childhood Cancer Action Days

Registration opened today for the 2014 Childhood Cancer Action Days in Washington, DC. The Alliance for Childhood Cancer will be the host of this two-day event that will encompass advocacy training and Capitol Hill meetings with Congressional Representatives. The training will take place at the American Society of Clinical Oncology (ASCO) in Old Town Alexandria, VA. Childhood Cancer Action Days not only educate people who want to learn more about how they can institute change, but they provide everyone in the childhood cancer community an opportunity to share their concerns about current issues before Congress.

Schedule

Monday, June 23, 10:00 am- 6:30 pm / Training and issues presentation, by Soapbox

Tuesday, June 24, 8:00 am- 5:00 pm / Kick-off and Hill visits

The Alliance for Childhood Cancer is a uniting force in the childhood cancer community. The following is a list of members in their organization from their website.

American Academy of Pediatrics , American Cancer Society , American Cancer Society Cancer Action Network , American Childhood Cancer Organization , American Society of Clinical Oncology , American Society of Pediatric Hematology/Oncology , Association of Pediatric Hematology-Oncology Nurses , Association of Pediatric Oncology Social Workers , B+ Foundation , Children’s Brain Tumor Foundation , Children’s Cause for Cancer Advocacy , Children’s Oncology Group , CureSearch for Children’s Cancer , Leukemia & Lymphoma Society , National Children’s Cancer Society , Pediatric Brain Tumor Foundation , Sarcoma Foundation of America , Society of Pediatric Psychology , St. Baldrick’s Foundation

Melinda and I just registered. I encourage others who share our passion to make a change in the world of childhood cancer to do the same. You don’t need to be a member of any of these organizations to register; parents, survivors, and all advocates are welcome.

We need research. We need less toxic treatments. We need access to medicines. We need supplies of medicine that don’t run out. And the list goes on…

This is the registration link!

http://www.allianceforchildhoodcancer.org/events?eventId=855348&EventViewMode=EventDetails

H.R. 2607: Caroline Pryce Walker Conquer Childhood Cancer Reauthorization Act

https://www.govtrack.us/congress/bills/113/hr2607

H.R. 2019: Gabriella Miller Kids First Research Act

https://www.govtrack.us/congress/bills/113/hr2019

We need to act and do much, much more to end the suffering of our children. Please join Melinda and many others who are devoting their lives to make sure there is change for the better.

Bear and Chemo Bag

Guest Blogger: Lee Marchiano

 

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No Money– Just a Few Minutes!

My friends, today I have another “free” opportunity to show how much you care about improving the lives of children with cancer.

http://www.thepetitionsite.com/1/CureChildhoodCancer/

Also, have you ever wondered how much you really do know about childhood cancer? Have you ever wondered how much you don’t know?  There is a short survey to help you:

 (http://www.surveymonkey.com/s/XQGLLQS

There may be some surprises for you. I will admit there was a big surprise for me. I was shocked to learn what a  pitifully tiny amount that the American Cancer Society contributes for childhood cancer. Hmmmmm…. I may have to work on them to create a “Childhood Branch.” I mean, kids are “Americans” too!

Does it appear to you that I am on a mission? Yes, I am certainly on a mission! There is no way I can sit back and do nothing… I truly love the children. They need us!

Gosh, I have missed you!

My goodness, my goodness! Do you ever get so busy in life that you feel things are swirling around you????????

Well, this would be me these past three weeks:)

The really difficult thing about not posting for a long time is that so much happens in that time that I have a hard time condensing the happenings. Here is my Campbell Soup “Condensation” of the past few weeks:

August 10–Kelly Teal from KSBY TV and Carina Corral taped an interview:

Published author, dancer, cancer survivor: Nipomo teenager being honored this weekend – KSBY-TV- msnbc.com:
http://cp2test.msnbc.msn.com/id/38693561/from/toolbar

August 12– I traveled to Santa Barbara for a TV interview with Marni Rozet, Executive Director of the Teddy Bear Cancer Foundation. It will air on Cox 8 during September for Child Cancer Awareness Month.

August 13– Early morning radio interview to talk about the upcoming American Cancer Society Tolosa Winery Fundraising Event with Amy and Kahuna, Coast 101.3.

August 14– All day dance rehearsal for Academy of Dance School Show

August 15– Early morning rehearsal at the Performing Arts Center– show at 2:00 p.m.  5:30– speak a few words at ACS Tolosa Winery Event.

August 18– Travel to Los Angeles with Teddy Bear Cancer Foundation for their annual Universal Studios Event.

August 19– First day of my junior year in high school… trying to add a community college course to my schedule.

In the meantime, I have been doing interviews and writing articles:

 RIT Open Publishing Guide Article:

http://opg.cias.rit.edu/battling-cancer-grace-publishing-perspective

(This one was fun to write and I got to meet Rachael… very, very nice!)

 TheSBON Interview:

http://thesbon.com/grace-interview/

(Thank you, Kira!)

 Choose to be a Hero Interview:

http://ichoosetobeahero.com/2010/08/24/grace-an-interview-with-melinda-marchiano/#sf488116

(My thanks to Shennendoah!)

Aren’t you happy I gave you the Campbell Soup “Condensed” version?

August

Dave Congalton KVEC 920

I had a great time today talking with Dave Congalton in a radio interview to promote the American Cancer Society Gala Fundraiser that will be held at Tolosa Winery in San Luis Obispo at 5:30 on August 15th. I loved Dave’s questions– especially the one about my port and Lance Armstrong! Gosh, he is funny! Now you are going to have to listen to the podcast to see what all that hilarity is about:) I finally had the chance to meet Kathleen Schroeder– American Cancer Society volunteer extraordinaire and Dave Ruiz– another volunteer extraordinaire, with a voice that belongs on the radio!

This morning, just after I yawned and opened my eyes, Kelly Teal from KSBY came to our house to tape an interview that will likely air on KSBY TV on Friday. Tomorrow, Mom and I are heading back  to Santa Barbara so I can do a TV interview with Marni and The Teddy Bear Cancer Foundation. Have I told you lately how much I love the Teddy Bear Cancer Foundation????????????? Also, September is Childhood Cancer Awareness Month. This child is asking you to “Be Aware!!!!!!!!!!!!!!!!!!!!!!” Your helpful assistance in some way is even better:)

Right after the interview in Santa Barbara, I am looking forward to joining Starbright World in their online chatroom. They are a group that does wonderful things to support teens with life-threatening illnesses. I am already looking forward to meeting them. I pray that I will be able to help them in  some way– somehow I already know that they will be helping me!

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