A Childhood Cancer Survivor Blogging about the World of Childhood Cancer

Posts tagged ‘Pablove Foundation’

Dancing With Love for The Children

Grace: A Child's Intimate Journey Through Cancer and Recovery

Dance, dance, and more dance filled my day today… you know how happy that makes me! We (Civic Ballet of San Luis Obispo) are rehearsing for our Spring Gala Performance.

Every time my body moves to music, I remember how I felt inside when I was physically unable to dance. It’s a memory that makes me overcome with not sadness, but with overwhelming appreciation that I am able to once again do what I love to do. Even though nearly four years have passed since my cancer treatment, my gratitude has not faded; it has grown.

As I celebrate my ability to move, I cannot help but think of children who are in the middle of their fight with cancer. How can I move through space to beautiful music and not notice there are others who cannot?

 http://www.youtube.com/watch?v=5c8HvpeRWrc

Today, I think of Trey

“Okay for those that believe in the power of prayer, I could really use your help … Please Pray ♥!! I’m still not feeling good :(. Running a fever and had night terrors … Please pray that it’s just a normal kid sickyness … please! Below is my Mommy’s post from last night :(. Please pray for strength and peace for her and Daddy too.”
“Afraid to fall asleep. I can’t sleep when he’s “healthy” …afraid if I go to sleep I may never see him again. He keeps waking about every 40mins with a 20 min long night terror. God please just grant us a break.”

 

I think of Alyssa

https://www.facebook.com/pages/We-love-you-Alyssa/299248763468174?sk=wall

http://www.giveforward.com/helpsupportteamalyss

I leave you with an opportunity to be an advocate for children with cancer. All you have to do is click away!

Pablove Foundation

“For every new “Like” Content Chemics will donate $1 to The Pablove Foundation. What are you waiting for?”
https://www.facebook.com/contentchemics

Thinking of Alyssa


 

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Pharmaceutical Companies Challenge

Grace: A Child's Intimate Journey Through Cancer and Recovery

The U.S. invests approximately $595,000 for research per victim of pediatric AIDS and only $20,000 for each victim of childhood cancer.

Treating children with cancer is not profitable for pharmaceutical companies.  Without huge changes to the PharmaceuticalCompanyGreedMachine, we will continue to fail the children of our country. Childhood cancer is the number one cause of death by disease in the United States.  Since the causes of childhood cancer remain a mystery, it seems to me that our country should be pouring time, sweat, and money into finding the cause and to creating a cure.

Instead, it seems to me there are many ostriches with their heads and necks stuck deep in the sand.  They don’t want to pull their heads out and look around because the truth will be ugly.  The ugliness is not childhood cancer; the ugliness is the fact that childhood cancer continues its rampage of destruction while we sit idly by.  I don’t have their financial documents in front of me for audit, but I will bet that pharmaceutical companies are making a large enough profit where they would be able to donate a few million for altruistic purposes like wiping out childhood cancer.  Yes, I call on each pharmaceutical company to audit the hearts of your CEO’s.

“The world will not be destroyed by those who do evil, but by those who watch them without doing anything.” ~Albert Einstein

Imagine how difficult it is for a child to fight cancer. Then, take in this reality…

“In the past 30 years ONLY ONE new cancer drug has been approved for pediatric cancer.”

                                                                                       ~Pablove Foundation

Can we, knowing this truth, sit with our mouths silent?

I cannot.

For the children who survive childhood cancer, 2/3 will suffer some form of lifelong effect from the treatment. All too often, it is the treatment that kills a child fighting cancer. All too often, it is the treatment that causes extreme pain and suffering.

http://abcnews.go.com/Health/story?id=2553765&page=1#.Tr7zREOa9tN

We are desperate for new treatments. We have not had a single meaningful improvement in pediatric cancer medication in decades and the children have paid the price,” says Dr. Peter Adamson, chief of the Division of Clinical Pharmacology & Therapeutics at The Children’s Hospital of Philadelphia. “Even though we cure four out of five pediatric cancer patients, even those who survive often go on to have lifelong side effects from the treatment we give them.”

This news story tells more about the difficulty of getting big pharmaceutical companies to develop new, less-toxic treatments for children with cancer…

 http://abcnews.go.com/Health/CancerPreventionAndTreatment/big-pharma-treat-childhood-cancers/story?id=14571277

What a sad truth it is to know that it will take legislation like the Creating Hope Act to lure pharmaceutical companies into doing what is the ethically right thing to do.

I invite all pharmaceutical companies to prove me wrong… show us that the health and happiness of our children are more important than any amount of profit you can gather and store.

Please don’t wait. Time is paramount.

Please continue your support for Reef

http://www.savebabyreef.com/

1,000 Candles for Baby Reef on Facebook:

https://www.facebook.com/groups/70216977000/

 

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First Pediatric Research Grants Given by The Pablove Foundation!

Grace: A Child's Intimate Journey Through Cancer and Recovery

The month of May is Brain Cancer Awareness Month.  When I think of all the children I am aware of who have fought brain cancer over the past year, I wonder how anyone can be unaware that children get brain cancer too.  I guess it depends on what you are paying attention to.  I know of a little boy who lives near London who is fighting brain cancer, and he has made a list of things he would like to do before he says, “the angels come to take me to heaven.”

Although I live across the world from this boy, and many of my readers do as well, I am counting on the magic of the word-of-mouth/internet social media to help him receive his wishes.  Hold onto your heart as I you read the list below:

1.To go and visit some Tiger Cubs and have a cuddle;
2. A trip in a helicopter
3. Visit Jamie Olivers “15” Restaurant/Kitchens in Covent Gardens and go in the kitchen and see how it all happens!.
4. Visits a quirky unusual hotel with sports memorabilia or futuristic gadgets.
5. Visit a Westend Show:- Mamma Mia, Grease, Lion King.
6. To go in the control tower or behind the scenes at Gatwick Airport or any London based Airport.
7. For a Large touch screen TV remote (size of an Ipad) so he can turn the TV over…he cannot see the normal size TV remote!

Is there something you might be able to do? Web, please work your wonders!

Every time I hear about pediatric cancer foundations giving money to researchers, it gives me great hope that there will be a time in our future when cancer is dead. PabLove Foundation gave their very first pediatric cancer research grants today! Congratulations to them on this excellent accomplishment! I received this news in a tweet from them this morning, and they have asked me to spread this great news, so please pass it on!

http://pablove.org/news/first-ever-research-grants/

One other organization I want to tell you about today is…

“TeenPower4Life is a national movement of teens who devote their time, energy and abilities to bring about positive and extraordinary change in the lives of others. This fall, our walkathons nationwide will raise funds for the National Children’s Leukemia Foundation. Join us and walk for the cure wherever you live.”

If you would like to “Like” them on Facebook:

http://www.facebook.com/TeenPower4Life?sk=app_4949752878

Before I forget to tell you, I saw a photo of Lilly— taken after her shave for the brave event that I told you about. For some reason, I was expecting to see a shiny dome atop her head, just like the one I sported during my chemo treatments. But all I could see were her sparkling eyes and warm, loving heart.

Funny how it is when people live straight from their hearts… when you look at them, you don’t see a People Shell at all; you see pure love.

That’s what I see when I look at Lilly… pure love.

Here I am discovering my true inner baldness!

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