A Childhood Cancer Survivor Blogging about the World of Childhood Cancer

Posts tagged ‘Pediatric cancer’

Support for Noah’s Light Foundation and the NOAH Protocol

Janet Demeter, Executive Director of Jack’s Angels Foundation, at Night of Golden Lights at the White House, CurefestDC

The Founder of Noah’s Light Foundation, Amber Larkin, received notification on October 23, 2014 that the Food and Drug Administration granted The University of Texas MD Anderson Cancer Center approval for a new pediatric cancer treatment developed to treat pediatric brain cancer, called the NOAH Protocol. This is remarkable and thrilling, offering new hope for groundbreaking results that have eluded researchers for three decades. For some horridly aggressive types of childhood cancer diagnoses that have a 0% survival rate, this is the best Halloween “treat” that could ever be created!

“Noah was diagnosed just before Halloween trick-or-treating, and it’s only fitting that we’ve received FDA approval to begin testing this month. Long before I lost my son to cancer, I knew that there had to be better treatments through personalized cell therapy – using your own immune system to help fight the cancer. His illness has defined the rest of my life. There are so many more ‘Noahs’ out there, and I now do this for each and every one. My wish is that the NOAH Protocol becomes a catalyst for the cure for all cancers.” ~Amber Larkin

The NOAH Protocol was named after Amber Larkin’s son, Noah, who fought medulloblastoma and died in 2012 when he was just eight years old. Ever since, his lovingly determined mom, Amber, has been on a mission to create hope and change for all children diagnosed with pediatric brain cancer. NOAH stands for New Opportunity Advancing Hope. For children battling childhood cancer, there is no greater hope than a possible cure. For survivors of childhood cancer, there is no greater hope than less toxic treatments which will both heal and preserve their future health. The sound of “Immunotherapy” instead of “Chemotherapy” is like a hymn sent straight from heaven!

For more detailed information:

https://www.noahslightfoundation.org/the-noah-protocol/

 “The NOAH Protocol (NewOpportunity AdvancingHope) is groundbreaking, advanced immunotherapy to treat children diagnosed with brain cancer. Until this treatment, chemotherapy had to be administered in extremely high doses to the entire system so that it could breach the blood-brain barrier, a protective layer that surrounds the brain. Radiation is aimed at the entire brain, damaging healthy cells in the process and rendering younger patients who survive unable to read, tell time or tie their shoes.”

Knowing that this treatment will treat cancer at the tumor site, without toxic chemotherapy and radiation, makes me fill up with tremendous hope for the future of our children’s health. Imagine…

Oncologists will use patients’ own cells, cells called NK, or natural killer cells, to fight their tumors. A unique surgical technique implants these cells directly through a port at the cancer location. The Killer Cells then do the job they are trained for; they kill cancer. 

Dr. Ronald DePinho, President, MD Anderson Cancer Center

Dr. Ronald DePinho, President of MD Anderson Cancer Center, speaking on pediatric cancer therapy development issues at the Congressional Childhood Cancer Caucus on September 19, 2014

It is not surprising to me to learn that this huge step forward is due in large part to the love of a mother for her son. Brains and research funding are vital components for moving forward for cures for all children with cancer, but love will always be the driving force that binds everything together for great advances. Without love, data is simply data.

Without love, this fantastic new hope for treating pediatric brain cancer would not even exist.

Don’t you just love the love of a mom?

You can support Amber Larkin’s mission by voting daily for her to receive the BJFH Award of $100,000 for Noah’s Light Foundation.

http://NASCAR.com/award

Sample Tweet to vote, copy, paste, and share, share, share!

I voted 4 #AmberLarkin @NoahsLight #BJFHAward finalist to win $100,000 4 @NoahsLight Cast your vote: http://NASCAR.com/award daily #ChildhoodCancer

Janet Demeter, Executive Director of Jack's Angels Foundation at the Congressional Childhood Cancer Caucus

Janet Demeter, Executive Director of Jack’s Angels Foundation at the Congressional Childhood Cancer Caucus

Guest Blogger: Lee Marchiano

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