A Childhood Cancer Survivor Blogging about the World of Childhood Cancer

Posts tagged ‘The Truth 365’

Talia on the Ellen Show and The Truth 365 Tonight

Grace: A Child’s Intimate Journey Through Cancer and Recovery

“The world is my country, all mankind are my bethren, and to do good is my religion.”

Thomas Paine 

Oh my gosh!

Did you see Talia on The Ellen Show today? The show has not come on here where I live, but this is what I have seen!

http://www.ellentv.com/2012/09/13/talia-becomes-an-honorary-covergirl/

I am so happy for Talia! Ellen, I thank you! You not only thrilled Talia, who has gone through way too much for any human… but you also thrilled each of us who care about children with cancer. What you did for Talia today, you also did for us. Her joy is my joy!

And Cover Girl, you ROCK, you just plain ROCK!

https://gracemelinda.com/2012/08/07/make-a-wish-hope-tour-meets-dr-josh-in-utah-and-hope-for-talia/

Do you know what tonight is my friends?

Just checking… to see if you have been reading along… or sleeping… because I would like to have your full attention.

Tonight, at 6:00 EST, The Truth 365 campaign begins. This is the link where you can watch!

This is a tremendous opportunity to learn, to grow, to share, and to make this world a safer place for our children. The number one cause of death by disease for children in our country is cancer. I am not messing around here. It’s time we go for the jugular. We do this by funding pediatric cancer research. 

What Ellen did for Talia could not be more wonderful.

It breaks my heart that Ellen could not give Talia what she really wants and what she really needs— a body free of cancer. Talia, if only we could!

Please do not sit on the sidelines, and hope that others will play the game.

It is not really a game at all; it is a matter of fighting with all we have against suffering and death of the most beautiful and precious humans on this Earth.

Make-A-Wish Hope Tour at Randall Children’s Hospital

 

 

 

 

 

 

Make-A-Wish, May my Wish Bloom and Grow

Grace: A Child’s Intimate Journey Through Cancer and Recovery

 

 

 

“Every End Is A New Beginning”

    ~Proverb

 

I will admit that this post is a difficult one to write. Wrapping up my Make-A-Wish Hope Tour Story is not easy to do. Like I quoted in my last day video, “All things must come to an end.”

I am discovering more each day that the mission of the Hope Tour has not ended, but instead, it has just begun. Meeting people with similar hearts for helping children with cancer has already given me the opportunity to connect people together for the common good of the kids. For example, I met Trevor Schaefer of Trevor’s Trek Foundation in Boise. Today, he is in Washington D. C. to meet with representatives about spectacular work he is doing to pass legislation that will help us learn about cancer clusters in the U.S.

It takes just a moment to sign the petitions:

Trevor’s Law:

http://www.petition2congress.com/4189/put-childrens-health-above-politics-vote-to-pass-trevors-law-sena/

While you are signing petitions for our children:

The Truth 365:

http://thetruth365.org/petition/

It’s true. The mission of the Hope Tour has only begun.

Make-A-Wish planned a very fun day for our final day in Los Angeles. Mom and I went to Universal Studios, with front of the line passes! Having concentrated on my health, my book, my studies, scholarship and college applications, and speaking/advocacy work the past four years, this was an entirely new concept to us! Oh my gosh– we laughed and laughed and loved our time there! Dracula tried his best to scare me in a gift shop. Little did he know that I have already faced the Real Monster!  I think he was a bit disappointed he was not able to rattle my cage. Hee hee, I think I rattled his instead!

Dracula was hungry!

 

Finally Met SpongeBob!!!

One of the things we did that we have never done before is have a caricature drawn. Mom enjoyed watching the artwork form, as I posed with my big Make-A-Wish button. “Yes, please include my button in the drawing!”

Caricature at Universal Studios

During our time at Universal, Mom took her usual “Jumping Photos.”

Hope Tour at Universal Studios

 

Hope Tour at Universal Studios

Hope Tour at Universal Studios

Hope Tour Video Day 27

Hope Tour Video Day 27 Part II (too funny!)

The final day of the Hope Tour arrived on July 14th—28 days after we left home. I had so many emotions inside me that day. I was sad. I was happy. I felt like this was what I am supposed to be doing, and it felt odd to have it end. I agonized over the location of my last Hope Tour Video, and then it came to me… right off the freeway on the way home… Cottage Hospital!

Final Hope Tour Video Day 28

I didn’t know then what I since have learned. All of the people I met, and places I went, are a part of me now. No one, and no thing, can ever take that away from me. I am grateful. I am truly, truly grateful. Now, I can take all that I have been given in my wish and transform it into help for the children I love so much.

Make-A-Wish made my wish much, much more than I ever wished or dreamed. May all that Make-A-Wish has given me grow and transform into the ultimate wish come true—saving children’s lives.

Location of my “Last Chemo Day at Cottage Hospital” photo

Thank you to Make-A-Wish!

 

 

 

 

 

Making The Weak Strong

Grace: A Child’s Intimate Journey Through Cancer and Recovery

“Even the weak become strong when they are united.”

~ Johann Friedrich Von Schiller

Thank you, Mr. Von Schiller. I agree. Unification, to me, means each individual can bring their own specialty/resource to the group. Unification means strengthening of all our bonds. Most importantly, unification of the childhood cancer community will translate into less suffering and more lives saved.

Oxford Dictionary definition of Unification:

The process of being united or made into a whole

Doctors,hospitals, foundations, please accept this invitation to form a strong fortress of purpose along with this growing list of others.  Peter C. Adamson, M. D., Chairman of Children’s Oncology Group, has since joined this “Dream Team.”

Thomas Jefferson Memorial
Labor Day Weekend with The Truth 365

From The Truth 365 Website

 Arms Wide Open Childhood Cancer Foundation

Awareness Beads

Band of Parents

BASE Camp Children’s Cancer Foundation

Battle For a Cure Foundation

The Brad Kaminsky Foundation

Brooke’s Blossoms

Caleb’s Crusade Against Childhood Cancer

Candlelighters NYC

Children’s Hospital of Philadelphia

Children’s Oncology Group

Ethan Jostad Foundation

Get Well Gaby Foundation

Healing Hunter Foundation

I BACK JACK Foundation

Isabella Santos Foundation

Jessie Rees Foundation: Never Ever Give Up

Kaely’s Kindness Foundation

Kids of Childhood Cancer

Kids v. Cancer

Kyle’s Krew

Melina’s White Light

Memorial Sloan-Kettering Cancer Center

People Against Childhood Cancer – PAC2

Pierce Phillips Charity

Press On to CURE Childhood Cancer

Seattle Children’s Hospital

St. Jude’s Children’s Research Hospital

The Andrew McDonough B+ Foundation

The Coco Foundation

The EVAN Foundation

The Maxwell Lacewell Foundation

The Sierra Rayn Foundation

Tucker Arnold Foundation

United in Grace

Wonder Capes

 More keep adding to the list each day. By uniting all of our “pieces,” we can create a strong, productive “whole.” With The Truth 365 campaign about to begin, this is a brilliant opportunity for the awakening of our communities, our nation, and the world we live in.

Please join in unity.

“Alone we can do so little; together we can do so much.”

~Helen Keller

Could that be a Monument balancing on top of my head, with a car going through it?  Yes, thought so! 

It Takes Two to Speak The Truth

Grace: A Child’s Intimate Journey Through Cancer and Recovery

“It takes two to speak the truth—one to speak and the other to hear.”

~Henry David Thoreau

September is National Childhood Cancer Awareness Month. This past weekend, I had the opportunity to participate in a project that is bringing together the entire childhood cancer community– a project I believe will change the future of childhood cancer. I remember my oncologist, Dr. Dan, explaining to me how the cure rates for childhood cancer have improved remarkably, because of the sharing of information through Children’s Oncology Group. I have since learned how there are multiple childhood cancer foundations working hard to raise money for pediatric cancer research, many of them started by families whose own child has fought cancer. By taking a stand alongside one another, we can have a larger impact, and make a greater impact faster. By joining together, we can learn and share The Truth.

The project, The Truth 365, seeks to create “One Voice” for all. In creating One Voice, we can “speak the truth,” creating the opportunity for individuals, private corporations, and for our elected representatives to “hear.” With all of my heart, I have hope that our Voice will not bounce off of numb ears and numb hearts. I want each one to accept a bit of responsibility when they “hear.”

The Truth is, childhood cancer research is overlooked and underfunded. The Truth is, childhood cancer researchers must spend many of their working hours applying for grants. I don’t want brilliant pediatric cancer researchers spending their precious time writing grant applications; I want them in the lab, finding causes and cures. Sadly, in the world of pediatric cancer research, this is The Truth. If funding for research is the greatest obstacle standing in the way of ending the suffering of thousands of children, what are we waiting for?

The Truth is, funding for pediatric cancer research is an extreme, high priority for us as individuals, as a country, and as a world. Let’s stand together for action now. Time is of the essence. Children are dying… seven each day in the United States alone.

This is a pledge to our children of today and a promise to children of the future. We are looking into the face of greatness here– greatness in the form of ending human suffering.

That is, our Baby Humans.

                                                                        Photo/Image by Mike Gillette