A Childhood Cancer Survivor Blogging about the World of Childhood Cancer

Posts tagged ‘Tom Nunn’

Circle The Wagons: Do We Truly Care For Our Young?

Grace: A Child's Intimate Journey Through Cancer And Recovery

There is a part of me that aches all over, knowing this is the final day of Childhood Cancer Awareness Month. I don’t want it to end.  Each year, as September arrives, I feel encouragement and hope that this, this will be the year that awareness of childhood cancer will take a giant leap. Half-way through this month, I was still looking for Gold Ribbons. The only Gold Ribbons I have seen are the Gold Ribbons on the profile photos of my Facebook friends—childhood cancer families. I have seen quite a few pink ribbons this month making an early appearance… kind of like the stores display merchandise before the holiday is anywhere in sight.

Forty-six children are diagnosed with cancer each day in this country.  Less than 3% of funding goes to fight childhood cancer. Seven children die each day in our country. There is no known cause. There is no known prevention.

How do we live amidst this death and destruction of children without rising up? I have learned the most about childhood cancer not from books, or from doctors, nor even from my own experience. I have learned the most from listening to families of children who have fought. They have a way of seeing straight through rubble to what is truth.  The truth is, we need to act swiftly and strongly to give to research.

May I offer the insight of Mr. Tom Nunn:

“Pink is popular for many reasons and justifiably so. It deserves research and funding for a cure but so does Gold for Childhood cancer. “If a coast guard helicopter was called out into the ocean to rescue ten people on a sinking boat, one of whom was a child, you know that he or she would without a doubt be the first one in the basket up to the helicopter. So why then does that same human response not apply here with Childhood cancer? Let me tell you why, it is because not enough $$ can be made by big pharmacy to invest into the medicine. OUR CHILDREN DESERVE MORE DAMMIT! We are letting them sink on a boat bobbing in the ocean of Childhood cancer.”
                                                        ~Tom Nunn, Max’s father

Not enough $$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$ can be made developing new treatments for children with cancer. Not enough money can be made off sick children to justify developing new, less toxic treatments.

I am sorry, but I find this sick!

I pray for an Awakening. 

Surely we cannot wait one more day to do something— anything— everything– to help stop childhood cancer.

Today’s suggestion of how you might help save a life…

Please give blood.

I had the opportunity to speak today at United Blood Services. I read the part of my book where I describe my first transfusion. I looked up after reading my five minute excerpt to glimpse at my mom in the back of the room.

She was wiping her tears.

Someone saved my life… and you can save someone else’s.

http://www.youtube.com/watch?v=87Y0lzZ9WY8

When our Awakening comes, we won’t need to concern ourselves with Gold Ribbons or what they stand for. We will ,naturally, without a thought to the cost, Circle-The-Wagons Around Our Young-In-Need.

This is the World I dream of Awakening to and the World I am working for.

Jamie Rendall lived to be 5

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Pearls of Wisdom and Rusty Gates

Grace: A Child's Intimate Journey Through Cancer and Recovery

“Make that change” ~ Michael Jackson

It makes me wonder. I wonder why humans spend enormous amounts of time focusing on what we are getting or not getting—instead of examining what we are giving or not giving.

I wonder where and when, “Me, me, me!” became the rule rather than the exception.

Would you like to know about the glaring exceptions to this dreaded state? I see exceptions everywhere I look in the world of childhood cancer. I see Mr. Tom Nunn ready to tattoo his head to raise money to fight childhood cancer and I see his wife, Jodie, prepared to shave her head. I see their sweet daughter, Lilly—at ten— willing to shave her head too. Not only do they do all of this, but they collect cans, have bake sales, hold continuous online auctions, and also collect gold items and old electronics. All of the money they raise goes straight to St. Baldrick’s. In all that they do, I feel their love for Max. I love how they have chosen to honor their love for him by diving head first into the water to help other children.

In addition to Lilly Nunn, there are more children who have received and processed “The Pearl of Wisdom” about giving. One of these kids is Nino Mireles. Nino’s sister fought cancer as a toddler, and she is now a survivor. Nino has created something delightful by combining his love for cancer children and his artistic talent. He paints lively, colorful murals to make children happy and at the same time he is raising money for the Teddy Bear Cancer Foundation and Cottage Hospital.

http://www.wix.com/ninom94/muralsforhope

Lilly and Nino are givers. Givers are the humans who “Make That Change.”

Thank you, Lilly and Nino. You are making this world a better place to live. Your Pearls of Wisdom are shining for other youth around you to notice. When they see what you are doing, they will feel the goodness of your heart and want to do something too.

Sometimes when we look inside ourselves, we discover that we hold the keys which unlock the old rusty gates imprisoning our potential to give all we have to give.

Here’s to unlocking a multitude of rusty gates.

“Make That Change.”  ~Thanks Michael… for your dancing:):):) and your love.

From Noah’s mom today:

NOAH’S STATS WONT STAY UP BECAUSE THE INFECTION IS SO BAD, THE XRAYS FROM LAST NIGHT & THIS MORNING LOOK WORSE. HE DOESN’T DERSERVE THIS! PLEASE LORD HEAL OUR BABY!

I want to adopt the Nunn family!

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