A Childhood Cancer Survivor Blogging about the World of Childhood Cancer

Posts tagged ‘Dell Children’s Hospital’

Even if our Wallets are Empty

Grace: A Child's Intimate Journey Through Cancer and Recovery

I haven’t written much about Twitter since the Twitter Police nearly nabbed me almost a year ago. I was busily tweeting childhood cancer “please help us” tweets when @1ballerina (me!) received a TweetWarning from someone who believed I was Spamming; he threatened to “report me.”

Since then, I have been behaving myself on Twitter, even though I never did find a Twitter Manual to describe to me in detail what is okay and what is not okay. I have met some incredible people through Twitter, and I just never know who or what will be the next surprise. (Happily, I don’t receive Twitter Police threats anymore!)

One wonderful surprise this week, was meeting @AFreeBirdOrg  They describe on their website what they do to help children with cancer—

“Our mission is to empower each bird to fly free.”

A Free Bird aims to provide the opportunity for children diagnosed with cancer to continue to explore their artistic passion, and to give them the strength and power to fight their disease.”

I am grateful for people/organizations that recognize this kind of need and then act upon it! I hope that by sharing my story on http://www.AFreeBird.info that people will understand how crucial it is for children fighting cancer to be able to continue their artistic passions because it truly helps bring healing.

http://afreebirdorganization.tumblr.com/post/8888955643/melindamarchiano

Speaking of Twitter and ways you can help fight childhood cancer by giving just a speck of your time, please tweet this to help raise money for Isaiah Alonso Foundation:

 @The_IAF and @SocialVest for #kickasscause NOW! We can win $ for #childhoodcancer. Please RT!

(Just copy the whole thing, paste it in your What’s Happening Window, and tweet!)

One more Click-of-A-Button way for you to be an advocate for childhood cancer this very day is to vote here for Journey for a Cure:

 http://www.vivint.com/givesbackproject/charity/1262?state=1842d89f75e0db34bd61e511d9b7efd0&code=AQAa8EkA-d9fBg-oXgy86KiGgOcmSU0-ODhjEdU-tjhoHikbMHzT8KoEVqdGMVLzUb9hBw8px2hT_Gr_M5EOW0sITXrEwoxzbvt9kl86yuswNDt501xXuI987DLaF69l2gux5lIrWCCyVLWDL9Z18MhKJNIr2dCgppd_FfGkbqvXEQrm4O34bcGoBScIMEKhG0S_8zZxG59dO2MDTvfDvady

Finally, I want to thank Mr. Tom Nunn for his great idea of asking everyone to pass on a childhood cancer story…

There are so many ways we can be childhood cancer advocates, even if our wallets are empty.

I loved this special doorway for kids at Dell Children's Hospital!

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Dell Children’s Hospital and Livestrong Headquarters

Grace: A Child's Intimate Journey Through Cancer and Recovery

Gosh, I barely know where to begin to tell you about this epic day of the Hope Tour!

Bone dry Texas finally received the rain today that they have desperately needed for months. Mom and I busted out our umbrella and made a mad dash through the pouring rain to HugoHopeMobile and fired him up to head from Houston to Austin. Yes, I it was backtracking, but for very good reason. We had the opportunity to tour Dell Children’s Hospital and Livestrong Headquarters. There is no way we could miss it!

The three-hour ride through lightning and heavy rain seemed to fly. Everything we saw along the road was interesting, and we gut laughed most of the way there and back about the silliest things. When I first saw Dell Children’s Hospital, it struck me how important it is for us to care for our sick children. We were met right as we walked in by a lovely and kind woman, Kip, who took us all around the hospital to see what an incredible facility they have. We learned that Dell Children’s is the only “Green Certified” children’s hospital in the world! Natural lighting, central gardens, and beautiful, spacious rooms make the hospital very child-friendly. All the rooms are private, they have a wonderful library (and librarian– Hi Gabby!) and they also have a Livestrong Survivorship Center. One of our very favorite things we saw was a fire engine X-ray machine!

Fire Engine X-Ray Machine at Dell Children's Hospital

After visiting Dell, we drove to Livestrong Headquarters where we met Leigh for a tour I will never forget. Right away, Mom and I were struck with Leigh’s warmth. I will tell you that Livestrong Headquarters was nothing like my imagination had dreamed up. Everything, from the building, to what was inside, to the way they run the organization, was truly ingenious. It is perfectly obvious that there are extremely sharp people running the foundation, and they do an incredible job. Yes, my word for everything I saw today at Livestrong is INGENIOUS!

 

Topping off our epic day, we returned to Houston and met my mom’s cousin, Kathy and her husband Rusty for a seafood meal I will remember for a long time! Tomorrow, the HopeMobile heads for New Orleans… visiting New Orleans Children’s Hospital on Friday morning.

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