A Childhood Cancer Survivor Blogging about the World of Childhood Cancer

Posts tagged ‘St. Baldrick’s Foundation’

Got YOU SeniorMadness!

Grace: A Child's Intimate Journey Through Cancer and Recovery

SeniorMadness is trying its best to keep me far from the Land of Blogging for Childhood Cancer. Whenever a week goes by without writing a post, I feel badly because I know that childhood cancer continues its destruction.  With everything in me, I need to do all I can to stop it. 200 children around the globe are going to die today, and 600 more are going to get diagnosed.  I refuse to allow SeniorMadness to gobble my words.  I love sharing what others are doing, and I love sharing news about advances in research. 

Yesterday, I read this terrific news from St. Baldrick’s:

St. Baldrick’s announces more than $5.1 million grant to the Children’s Oncology Group! For the first time, this year’s grant will also help COG member institutions open four specific high-impact clinical trials which they might otherwise not be able to offer their patients.

http://www.stbaldricks.org/media-and-photos/media-stories/view/headline/title/St.%20Baldrick%E2%80%99s%20Foundation%20Announces%20$5,140,000%20Grant%20to%20the%20Children%E2%80%99s%20Oncology%20Group/id/1559

Clinical trials are the breeding ground for hope for a cure for cancer. While sharing about St. Baldrick’s, I also need to mention and thank the 46 Mommas for their tireless support for St. Baldrick’s. 

Speaking of research, news from Kids Cancer Research Foundation today is about T-Cells.

T-Cell therapy involves taking out the child’s T-Cells, making them stronger, and linking them to a mouse antibody that is then injected back into the child to target the Neuroblastoma (NB) cells.

The T-Cells are natural killer cells, kind of like Pac Men. The mouse antibody portion of the combination helps identify the NB cells, thereby brining the T-Cells to the Neuroblastoma cells to be killed.

Dr. Louis, from Texas Children’s Hospital/Gene Therapy at Baylor College, just published their T-Cell trial in the journal “Blood.” Out of 19 children in 2 groups, 8 children had no disease after frontline treatment. After 3 years, not one of the 8 relapsed. Frank Kalman, executive director of Kid’s Cancer Research Foundation, reports, “Numbers like this don’t exist in NB (neuroblastoma) research.”

Continuing on the subject of research, I want to tell you about a very fun activity coming up this weekend to help support CureSearch.  There is a very brave boy named Sy Sherman who has inspired his Aunt Rachel to “Kick It” into high gear to fight childhood cancer. If you live in the San Francisco Bay area, please check out this great event that will take place on Saturday, October 29th.

 http://www.kick-it.org/events/kicking-cancer

Finally, I want to share a petition. (You know how much I love sharing easy, clickable ways to be an advocate for childhood cancer!)

https://wwws.whitehouse.gov/petitions#!/petition/keep-kids-alive-allocate-more-funds-towards-childhood-cancer-research/8ZnnxNgw

Click, click… nice… way to go!!!

And you, SeniorMadness… hee hee, got you  this time!

You "Kick It" Sy!

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Don’t Stop Believing

Here I was, sitting and thinking about the team. My friend posted Emmett’s hope flag hanging in Union Station in D.C. Instant tears, knowing that he and everything he has endured is honored and respected and he is spoken for! I love you, my Little Lion Man!

           ~Angela Williams

46 Mommas Banner in Union Station

I thought of the 46 Mommas all day today—especially when it reached 2:00 p. m. PST. I knew that a few of the Mommas would be sitting in the chairs, ready for TheBigShave. Have you imagined what they would feel like? I’m not talking about the new-found breeze on their heads, but what it must feel like inside. Each one of the Mommas has a huge reason why they are there. Somehow I know each of them would give more than their head of hair if it meant that pediatric cancer research would be fully funded. They all know that when that day comes—full funding for research—we will begin to make huge strides toward cures.

This is why they Shave For The Brave.

If you haven’t yet, please considering adopting a Momma.

Here is a video introducing each of The Amazing 46 Mommas…

http://www.youtube.com/watch?v=TxJTi93URwc

Thanks for the Inspiration Anna!

“At 5:00 EST, 46 of the most beautiful women in the world will become bald. Their children had no option of losing their hair. These ladies are in D.C. at Union Station. Some have lost their children to cancer, some have children still in battle & some have survivors (but the worry never stops). Each shaved head brings awareness and money towards research and a cure for childhood cancer.”

                                                                 ~Jeri Where’saCure Geary

Thank you Angela, Anna, and Jeri. May the money raised today for St. Baldrick’s lead to what we are all working for, hoping for…

Don’t stop believing.                                        

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Ellen and The Blanket Fairy

Grace: A Child's Intimate Journey Through Cancer and Recovery

What a beautiful package,  Blanket Fairy!  I know what lies on the inside must be even more beautiful… to catch the attention of Ellen… all for the purpose of helping children with cancer.

I know your game, Blanket Fairy.

I love your game, Blanket Fairy!

Anyone else want to help out the Blanket Fairy while you sit in front of your computer with a tweet here, a Facebook message there?

Please copy, paste, and send into cyberspace for others to share, as requested by The Blanket Fairy:

I have shared this with over 1 million people so far this morning. Please share and go post on Ellen’s Show page at least. Thanks so much 🙂

I just got the delivery signature confirmation and this package is in the studio. It got there late this morning. Please everyone take 30 seconds to share this and post the following on walls. ♥

Ellen this package was delivered to your studios today. Please be on the look-out for it. There is something very special inside that I handmade just for you. It is called Package of Hope for a reason… and when you open this up you will see why. With Much Love The Blanket Fairy ♥

Gold Package for Ellen


http://www.facebook.com/pages/The-Blanket-Fairy/490397070410?sk=wall

PLEASE POST THE ABOVE ON THESE LINKS BELOW:

http://www.facebook.com/ellentv

and

http://www.facebook.com/ellentv?sk=wall&filter=1

and on twitter at:

http://twitter.com/#!/TheEllenShow

Tweet this: Ellen this package was delivered to your studios today. Please be on the look-out for it. ♥ TBF and if you can attach a picture of the package above that would be great!

‎Okay, Blanket Fairy, make the GOLD moment happen! 

Note to Ms. Ellen DeGeneres…

You know, Ellen, The 46 Mommas are going to “Shave for the Brave” in Washington D. C. next week, on September 21 at Union Station.  Seriously. 46 moms will shave their heads to raise money for St. Baldrick’s and pediatric cancer research. I would love for you to consider joining them— not to shave your head, but to see first-hand the desperate need to raise funds to stop childhood cancer.  (If you feel you absolutely need to join them in ridding your cabeza of hair for this great cause, please, for the kids, do! If you will, I will too!!!!!!!!!!!!)  

I would love for you to see how this tremendous group of women is raising money toward a cure.

Washington D. C. September 21st.

46 Mommas Shave for The Brave.

I imagine you have someone who can make the reservation for you. Please have them do it!

Just in case Washington D. C. has a bit of a fall chill in the air, don’t forget to bring the gift from The Blanket Fairy, you will be warm as toast!

 Love you, Blanket Fairy… love you Mommas… Love you Ellen… Love you warriors…

 

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Hold Them Close

Grace: A Child's Intimate Journey Through Cancer and Recovery

The incidence of invasive pediatric cancers is up to 29% in the past 20 years. Source: PAC2 & CureSearch

One week from tomorrow, I will have the honor and opportunity to sit in the Reading Chair to share excerpts from my book at the Central Coast Book and Author Festival. The event takes place from 10-4 at Mission Plaza in San Luis Obispo on Sunday, September 18th.  Will those of you who have read Grace please help me choose what you think would be the best passages, so that I can use my time best to raise awareness for childhood cancer? The people organizing this event had no idea that September, along with being Literacy Month, is Childhood Cancer Awareness Month as well. They do know now!

Maybe this for one… from Grace…

“I heard myself groan and pried my eyes open to look at the clock. Believing it was morning, I was shocked to see it was only midnight. Ugh. I tried to adjust myself to get more comfortable, but I found my weakness overbearing. I didn’t want to move. Heck, I couldn’t move. I let out another moan. My stomach hurt so badly. The pain was nearly unbearable, like barbwire was trying to be churned up and digested in my belly. The cries and moans that escaped from my lips woke Mom, who slept on the fold-out bed nearby. As she turned to look at me, I blubbered and groaned in pain. I just couldn’t help myself—that was one of the worst moments of my life. Mom reached for my small hand that hung, motionless, over the side of the bed. The tears flowing down my cheeks settled on my pillow, making it wet and soggy. I didn’t believe where I was or how I felt. It was all too intense, too scary—too mind-blowing. Lying there, I wondered if other people besides Nurse Cyndi and Mom knew of my suffering. While I sobbed, groaned, and experienced total and complete helplessness, people were sitting on their couches watching Jay Leno with a tub of Häagen-Dazs. My mind tried to grasp this concept, but it became too exhausted and failed. Words only from hell will begin to suffice in describing how I felt that night. The only thing that gave me hope was the warm, soft touch of Mom’s hand.”              copyright Melinda Marchiano 

 As I was saying in my last post, it’s those mini-lights of love and hope that help get us through the most difficult times. If we are not careful—and grateful—we miss them all. No matter how bad things got, I had Mom’s warm hand. My message here to all of the families who feel they can do nothing to help the suffering of their beloved child who is fighting cancer is to let you know that the best thing in the world was to have someone just be with me, just love me, just hold me.

So hold them close. Know that your presence, warmth, and love are exactly what they need—even if they cannot express it.

Hold them very close.

Reefie Needs our Help

 An update for everyone who has fallen in love with Reefie:

Please continue your support for this amazingly strong and incredibly lovable boy!

http://www.gofundme.com/ReefieCarneson-Family

A MIRACLE IN THE MAKING
by Charmeon FortheCure Carneson on Friday, September 9, 2011 at 2:29am

“OMW Dont know where to start. Ryan and Lydia are blown away. Such positivity, such incredible hope. Thank you Lord and everyone for getting him to this incredible hospital. Dr. Shah wants Reef back as soon as Novemberr as an inpatient for a week and then for an outpatient for 1 year. God knows how we are going to raise that amount of money in so short a space of time. Dr. Craig is soooo positive, says they have had worse contractions of hands and those kids are now using their hands perfectly. OPERATING WOULD BE A HUGE MISTAKE. They will have him eating, drinking talking and using his hands in a year. Dr. Shah says Cyclosporin is known to affect the hearing adversely and Reef may need to be fitted with hearing aids. The have a new drug on the market which apparently after his ONE WEEK of inpatient treatment will clear up his GVHD. GVHD WILL NOT BURN ITSELF OUT as we have been told, the contractures would only get worse and Reef would land up in a wheelchair. They are sorry that he was not seen to earlier. They have not seen a child with such bad GVHD before because they NEVER let it get this bad before treating it. REEF WILL HAVE TO HAVE ANOTHER PORT INSERTED. They also recommend that he see a pulonologist (horrified at the piece of port that is still in his chest) an opthalmologist, an orthopaedic surgeon – oh so may specialists. THEY WERE AWESOME – everything Reef had done he got a little toy, at one stage he dropped his toy, a nurse swooped down grabbed it, sterilised it and gave it back to him. GET THIS HE WILL BE ENROLLED IN SCHOOL there in December as they encourage that he mix with other children.
HE MUST NOT HAVE HIS BABY INNOCULATIONS NOW as we have been advised,. OH Lord I could ramble on here for hours – So much positivity at 2.30 am had my head reeling. Ryan will need a work permit in order to stay in the country that long. I AM IN TEARS HERE AND JUST CANT STOP – THANK YOU TO EVERYONE FOR GIVING REEF THIS CHANCE TO BE A NORMAL HEALTHY LITTLE BOY.”

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The Truth Is, It Takes Sacrifice

Grace: A Child's Intimate Journey Through Cancer And Recovery

“A man never stands as tall as when he kneels to help a child.” ~ Abraham Lincoln

 “If our American way of life fails the child, it fails us all. ~Pearl S. Buck

“Children are one third of our population and all of our future.”  ~Select Panel for the Promotion of Child Health, 1981

“Children are the world’s most valuable resource and its best hope for the future.” ~John Fitzgerald Kennedy

“It is easier to build strong children than to repair broken men.” ~ Frederick Douglass

In recognizing this month of September as Childhood Cancer Awareness Month, I am happy to share these quotes about children.  Today, and every day (believe me!!!!!) I want to give an outpouring of loving thanks to the people who work with and treat childhood cancer patients.  I have heard people say over and over again, “How can anyone do that… work with very sick children?” Right now, at this very moment, I want to express my sincere gratitude to everyone who “is able” to work with sick kids. Thank you for choosing the path you have chosen so that I – and many other children—are able to be here today.

I want to personally thank Dr. Dan, Dr. Gonzalez, Dr. A., Dr. Keshen, Dr. Pickert, and the entire staff at Cottage Hospital.

When I imagine the sacrifice it takes, not only to achieve the needed education, but to live each day with the great emotional impact of their occupations, my respect and admiration grows for everyone who has stepped into the “ring” of fighting childhood cancer.  What would we do if no one sacrificed?

The quotes above remind us that “our” children are more than worth sacrificing for. Giving now to help stop childhood cancer will certainly act as an “Insurance Policy” for our children in the future. You don’t need to get a medical degree, or work in a hospital, or even work with sick children… we all have something to give. 

Sharing from Max’s Facebook page:

600 CHILDREN get DX with cANCER a day 365 days a year. 200 children die from it each day 365 days a year. Is your child safe? $$ = Protection for children. Please buy a policy from www.curesearch.org, www.stbaldricks.org orwww.alexslemonade.org and treat your children’s future like you would your auto. Are your Children’s future in good hands? No restrictions apply, valid worldwide. STOP CHILDHOOD cANCER!

“The child must know that he is a miracle, that since the beginning of the world there hasn’t been, and until the end of the world there will not be, another child like him.” ~ Pablo Casals

46-7 Stop Childhood cancer

 

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Dear Mr. or Ms. BIG NAME Fashion Designer

Grace: A Child's Intimate Journey Through Cancer and Recovery

I am sitting here in my soft, long-sleeved, pink “Team Max” shirt and ideas are bouncing around in my brainola like ping-pong balls. I love my Team Max shirt! I love not only its softness, but most of all that I am able to raise awareness of childhood cancer every time I wear it. I even have the opportunity to answer people when they ask, “Who is Max?” This is my very favorite part; I love having the chance to tell people about one of my biggest heroes. Max set a goal of raising $100,000 for St. Baldrick’s and pediatric cancer research, inspiring multitudes to give with his motto, “Two bucks, I mean it!” At only seven years old, Max knew all about giving and helping others. Last Thanksgiving Day, Max’s family learned the pain of saying good-bye to him. They are now carrying on Max’s mission to raise money for pediatric cancer research, and I have no doubt they will surpass Max’s goal.

Now for the “Bouncing Brainola” part…

I admit that I am “fashion challenged,” and have little knowledge of “what is hot.” Those name brands that have sky-high price tags just because they have a Hot Fashion Name puzzle me.

What if…

What if Team Max, Braden’s Hope for Childhood Cancer, B+Foundation (“It’s not a grade, it’s an attitude!”) Alexa’s Pediatric Cancer Foundation, Arms Wide Open, Isaiah Alonso Foundation, et al suddenly became popular high fashion? What if everyone suddenly needed fashion gear that not only covers their body and keeps them warm, but it fights childhood cancer every time it is purchased?

Maybe there is someone in the Hot Fashion Designer Name business who would like to give their name to help raise money for childhood cancer– just by lending their name, their brand.

Like I admitted before, I am fashion challenged; my knowledge in this area is slim to none. Please Mr. or Mrs. Fashion Designer with a BIG NAME, step forward into the light so I may see you and welcome you to the most noble of worlds you can live in… the world of helping children in great need.

Max, Mighty Leader and my Hero

 

 

 

 

 

 

 

 

TwitterLand People, please copy, tweet this, and vote to help raise money for Isaiah Alonso Foundation!

Pls RT & vote #kidsmatter 50k from #pepsirefresh http://t.co/P6M3zFg @The_IAF is #kickasscause@socialvest!

 

 

 

 

 

 

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Loving Lilly

Grace: A Child's Intimate Journey Through Cancer and Recovery

I have been thinking of Lilly all day long.  Today is the day she shaves her head for the brave, unselfish, honorable reason of raising money for St. Baldrick’s Foundation and for childhood cancer research.  Lilly is not yet a teenager, yet she has boldly stepped forward to carry on her brother’s mission of raising money to stop childhood cancer… even if it is two bucks at a time. 

I ask you today to show your love for Lilly. I ask you to do it now.  (I can see you shaking in your boots like I am looking at you, and you are right, I am!) There is a great saying in “The King & I,” where the King of Siam says, “Now is always best time.”  I have found this to be very valuable in my life; I am asking that you try practicing it right now by clicking the link below:

http://www.stbaldricks.org/participants/mypage/participantid/445497

Right now is the best time to act… and I would love for you to let me know about it by commenting!  Now that you have clicked the link, you are halfway there! (Don’t start sweating and panicking!)  You have the opportunity now to decide how much you would like to donate. I will not accept any excuses. “I can’t afford it” will not work with me.  I will just ask you to give up that Starbuck’s, or eat beans for a night, or even use less toilet paper (hee hee!) If Lilly can show love for her brother, Max, and other children fighting cancer with this exceptional act of love and kindness, the least we can do is dig deep… very, very deep within ourselves to locate something– anything– to give.  As Max would tell people, “Two bucks, I mean it!”  If you have “Two Bucks” to give… you have something wonderful to give!

May I please cover possible excuse #2?  “I don’t have time” won’t work with me either.  Get up five minutes earlier or go to bed five minutes later.  Give up five minutes of that silly television show that is garbling your brain cells and recognize we have a hero among us! 

Just like her brother Max, Lilly is a true hero.

It is a joy, and a truly humbling experience, to support Lilly.

I just did!

Incredible Super-Sib Lilly


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LoveBug, Legislation and Beaver Dams

Grace: A Child's Intimate Journey Through Cancer and Recovery

I met one of my heroes. I will never, ever forget it.

I met Braden Hofen.

It was even more inspiring than my wildest dreams could have imagined.

Why?

Because he is Braden!

Are there ever times in your life where you really want to do something, but then those creepy doubts and negative thoughts take over, and you choose to accept them over what your heart is telling you to do? Well, this time, our hearts won. Mom and I cannot even describe what it means to us that we were able to travel to Kansas for Braden’s Run! There were so many highlights, I won’t name them all, but I will tell you that meeting others who are passionate about the fight against childhood cancer—while kicking cancer’s patootie—was awesome, awesome, awesome! I mean… what better inspiration and motivation to keep advocating for the children, than to look straight into the eyes of others who feel just like I do? Memories of spending time with Braden, his family, Christine (Hello–tremendous friend who was inspired by Braden and Deliece to start the Oprah, Please Do a Show on Childhood Cancer Facebook Page,) Lauren, Rachel, and Patrick will always be warm inside of me. I even got to meet two of the amazing 46 Mommas! Ms. Cheryl, I will never forget the surprise blessing of meeting you!

Back to six-year – old miracle boy Braden…

I am still filled to the tippity-top with the love and support that surrounds him. He brings out the very best in people by being the Lovebug he is. His family, his friends, and the people of his town and surrounding communities came to Braden’s Run to show their support in a great big way. The Kansas City media and the Kansas City Chiefs honored the event with their support as well. Braden’s Hope Foundation raised a lot of money for pediatric cancer research.

What if?

What if the money raised last weekend funds the exact research needed for a cure?

Seriously… what if?!

Doesn’t it make your mind spin… thinking of what you can do to multiply the odds of funding research for a cure??????????

Speaking of funding, thank you PAC2, for your update on the Caroline Pryce Walker Conquer Childhood Cancer Act:

From PAC2  4-22-11

“We have all wondered why this Act, which had 100% bipartisan support, would NOT be fully funded.   Interestingly enough, so did the House of Representatives Appropriations Committee, who said this to National Cancer Institute (NCI) in the FY 2010 House of Representatives Report 111-220 (Page 109):

“Pediatric Cancer — The Committee urges NCI to intensify pediatric cancer research, including laboratory research, to identify and evaluate potential therapies, preclinical testing, and clinical trials through cooperative clinical trials groups. This research should include research on the causes, prevention, diagnosis, treatment, and late effects of pediatric cancer. The Committee also requests that NCI report to the Committees on Appropriations of the House of Representatives and the Senate by June 1, 2010 on the actions it has taken to implement the research-specific portions of the Caroline Pryce Walker Conquer Childhood Cancer Act.“

Why is funding for research critical NOW?

Noah.

Another child lost to cancer. Another family with broken hearts. Another lost future.

One less beautiful soul in our world. We need beautiful souls.

We cannot wait—children are not like roads that can wait to be repaired. I see our tax dollars regularly appropriated for road repairs and expansions. I am not suggesting that roads are unnecessary, just wondering why this type of funding seems to flow like a river while there are endless “Beaver Dams” blockading the swift flow of funding for critical research that will save children’s lives. We need to prioritize right now because the number one killer of our children is cancer.

It won’t go away by itself. The facts are– it is becoming more prevalent. Most childhood cancers have no known cause. Let’s find a cure; let’s find the cause. Imagine not only a cure, but prevention—whoa!!!

This discovery will not come cheap. I wonder how many will give of their time, give from their hearts, their wallets and their guts to be able to one day be certain that not one more child will suffer as Noah has.

It’s time for all of us to put on the fighting gloves and fully fuel up. The Monster is getting bigger, meaner, and stronger– and it is making me really, really mad.

Anyone ticked off? Want to do something about it?

Please pray for Noah’s family.

Please remember there are 40,000 children fighting cancer in our country right now. Please know that they need us. Over 200 children were diagnosed with cancer in the United States this past week, and this statistic continues each week that comes and goes.

Every chance you get to give to pediatric cancer research is an opportunity to be a part of the end of the suffering. Every little bit matters… every single bit.

I want, with every speck of my soul, to be a part of ending the suffering.

As of yesterday, a new website launched…  www.melindamarchiano.com

Please direct people who want to buy my book to this site…

*** We (Happy Quail) chose a merchant processor with a Give Back program to benefit Children’s Miracle Network—Children’s Miracle Network Hospitals are where the vast majority of childhood cancer patients receive their care.

*** Each month, we will choose a different childhood cancer organization to donate proceeds to. The first foundation we have chosen is Braden’s Hope For Childhood Cancer.

*** If you would like your book signed, I would love to…

Now, I need to thank each of you that are doing your part. I realize that sometimes it seems like we are all trying to make it across a violent sea with a row-boat and only one oar… but please, please keep doing what you are doing.

46 Mommas & St. Baldricks—please keep shaving

Alex’s Lemonade—please keep selling that lemonade

CureSearch—please keep walking

Others… you know who you are… please keep on.

Let’s keep inspiring and motivating each other. It makes us stronger. The love we share among us is creating a cohesive bond of hope.

Where there is love, there is hope.

Hope… for each child… every single one is precious. Every one. Oh gosh… do we need hope!

People of Kansas and Missouri… I have been blessed to meet you!

Braden and HOPE!

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Pearls of Wisdom and Rusty Gates

Grace: A Child's Intimate Journey Through Cancer and Recovery

“Make that change” ~ Michael Jackson

It makes me wonder. I wonder why humans spend enormous amounts of time focusing on what we are getting or not getting—instead of examining what we are giving or not giving.

I wonder where and when, “Me, me, me!” became the rule rather than the exception.

Would you like to know about the glaring exceptions to this dreaded state? I see exceptions everywhere I look in the world of childhood cancer. I see Mr. Tom Nunn ready to tattoo his head to raise money to fight childhood cancer and I see his wife, Jodie, prepared to shave her head. I see their sweet daughter, Lilly—at ten— willing to shave her head too. Not only do they do all of this, but they collect cans, have bake sales, hold continuous online auctions, and also collect gold items and old electronics. All of the money they raise goes straight to St. Baldrick’s. In all that they do, I feel their love for Max. I love how they have chosen to honor their love for him by diving head first into the water to help other children.

In addition to Lilly Nunn, there are more children who have received and processed “The Pearl of Wisdom” about giving. One of these kids is Nino Mireles. Nino’s sister fought cancer as a toddler, and she is now a survivor. Nino has created something delightful by combining his love for cancer children and his artistic talent. He paints lively, colorful murals to make children happy and at the same time he is raising money for the Teddy Bear Cancer Foundation and Cottage Hospital.

http://www.wix.com/ninom94/muralsforhope

Lilly and Nino are givers. Givers are the humans who “Make That Change.”

Thank you, Lilly and Nino. You are making this world a better place to live. Your Pearls of Wisdom are shining for other youth around you to notice. When they see what you are doing, they will feel the goodness of your heart and want to do something too.

Sometimes when we look inside ourselves, we discover that we hold the keys which unlock the old rusty gates imprisoning our potential to give all we have to give.

Here’s to unlocking a multitude of rusty gates.

“Make That Change.”  ~Thanks Michael… for your dancing:):):) and your love.

From Noah’s mom today:

NOAH’S STATS WONT STAY UP BECAUSE THE INFECTION IS SO BAD, THE XRAYS FROM LAST NIGHT & THIS MORNING LOOK WORSE. HE DOESN’T DERSERVE THIS! PLEASE LORD HEAL OUR BABY!

I want to adopt the Nunn family!

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Where oh Where is There Great Information?

Grace: A Child's Intimate Journey Through Cancer and Recovery

I have a question for you. Where do you go for up-to-date, accurate information about childhood cancer? Where can you look for important facts, pending legislation, a list of resources, a summary of what other childhood cancer foundations are doing, personal stories, and much more?

People Against Childhood Cancer, or PAC2.

This organization was started by someone I look up to. If I am looking for answers to important questions about childhood cancer, this is the man I ask. And you know what? He always, always, takes the time to answer my questions with sincere helpfulness. I appreciate the way he takes lots of information from many sources and synthesizes it into a meaningful package. I love how it is a place for many organizations to share their voice.

I love how this man has given his heart and soul to make the world a much better place for children fighting cancer. I love how this man is working his ever-loving you-know-what-off to do all of this and, at the same time, raising money in memory of his son to fund pediatric cancer research.

The man I am speaking of is Bob Piniewski.

Here is a great opportunity to help him in his current efforts to stop childhood cancer… Bob will be shaving his head to raise money for St. Baldrick’s.

http://www.stbaldricks.org/search/everythingresults/searchValue/bob+piniewski/submitEverything/Search/

Right now, before you move on with life, click that little linky-dinky above. Please consider what you might do without this week so that you can donate even $5. Think about the sacrifice that my friend, Bob, has made. Please think about the children who truly need our help. Please give what you can.

Thank you Bob, for everything…

Please help Bob raise money for St. Baldrick's in memory of AJ

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