A Childhood Cancer Survivor Blogging about the World of Childhood Cancer

Grace is Going to Paris!

June 9, 2010

Giggle Giggle. I will not name any names because I respect the privacy of these kind people, but I have to tell you that there will be two Advance Reader Copies of Grace: A Child’s Intimate Journey Through Cancer and Recovery on a plane to Paris this Friday. Gracie-poo in Paris! Now I really feel how writing a book is like birthing a child– I feel like I  am going to Paris because I am so excited for Grace to go!

What is even more wonderful than Grace in Paris is that I have found a friendship in corresponding with these people that delights me so much I feel I am glowing in the dark. You know what I am talking about– when people gush love and kindness, it feels like sunshine inside of me. Grace is going to Paris with “Sunshine!”

For more news that excites me, my sophomore year of high school will end in two days…

And…

Grace  showed up on Greenleaf’s website today:)

http://173.203.240.190/publication/grace/1331

One more thing that is most important of all. I know a teenager named Logan who will be having surgery tomorrow for throat cancer and I would love to have anyone and everyone who believes in prayer to offer one or two or three or… for Logan.

Thanks for your love, for your care, and for your prayers.

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Wendy Robards, The Tribune, and ARCs

June 8, 2010

Bunches of Advance Reader’s Copies of Grace: A Child’s Intimate Journey Through Cancer and Recovery were sent last week, and there are more ready to be mailed this week. I heard back from Wendy Robards, awesome book reviewer and even more awesome dog lover! (Do you know anyone else who loves dogs?!) She even shared a photo of Raven with me, and I think I sent her a photo of Rowan and I, or maybe Echo. Anyway, Wendy wrote a couple of posts about my book, and she will review it in September when Grace gets closer to “her” publication date.

Links to Wendy:

Sunday Salon post

Mailbox Monday post

This was my last full day of school for my sophomore year– I am ready to rest my brain a bit. It feels like some jiggly and weary jello up in the ol’  cabeza! Also, I am so excited to have more time to devote to sharing Grace.

Today I signed a print rider to order final copies of Grace: A Child’s Intimate Journey Through Cancer and Recovery. Any guesses on how many books are being printing for this first printing? Just after I signed, we received an email from our local paper, The Tribune. I am grateful for this opportunity to share. When we share those rough roads we have driven down with others, it always seems to help. That is what I really, really want to do. 

Rowan Giving me Therapy

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Children’s Miracle Network Telethon

June 5, 2010

Today and tomorrow, the Children’s Miracle Network Telethon is going to be broadcast nationwide. The hospital where I was treated, Cottage Hospital, is a Children’s Miracle Network hospital. You can imagine why this cause is so dear to my heart. Money donated to Children’s Miracle Network goes to your local Children’s Miracle Network hospital. I am extremely grateful for the care I received and that Cottage Hospital has the staff, the equipment, and the facilities to give their patients the best health care possible.

You may not think that $5 or $10 is much of a donation, but imagine 500 people giving $10! It will add up and every single donation makes a difference.

If you live in the Santa Barbara area, my Children’s Miracle Network vignette will play tonight between 9:30 and 9:46 and tomorrow between 3:46 and 4:00 on KEYT Channel 3. Thank you for considering supporting your local Children’s Miracle Network hospital!

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Just Turned 16–Life is Great!

June 2, 2010

Not a day arrives that I don’t wake up (thankfully!) and feel gratitude for breathing, opening my eyes, and being able to get out of bed. This past weekend, I was especially spilling over with thanks. You know how the simplest, most pure things in life bring the most joy?

My 16th birthday was last Saturday. For the very first time since last August, I did not lift a finger to do homework… not even a pinky! The weather was something out of a Weather Perfection Catalog and I basked in the warmth of the weather and the love around me. My entire family went for a morning walk around the bike path and Gramma and Poppy joined us poolside in the early afternoon for a BBQ feast of steak, crab, and scallops. Mom baked a Lemon Chiffon Cake and served it with ice cream, whip cream and fresh blueberries, raspberries, blackberries and strawberries. Yes, she knows what I like!

Yum! Anyone hungry?

In the early evening, we went to the Shell Beach tidepools. I love living near the beach and it never gets old to watch the sun set with the waves crashing nearby. Spiritual renewal is touchable at times like this.

My brothers, Nicholas and Dean, gave me a present of Dueling Floaties with squirt guns mounted on them for fun summer pool games ahead. I already tried one out yesterday– squirting my dad while he tried to relax in the sun. I think those babies are going to be lots of fun!

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ARCs of Grace Have Arrived!

May 31, 2010

Last Friday, I was feeding Brownie, my neighbor’s dog.  It was late in the day, after school and dance.  I had already fed Brownie his two scoops of food and given him his pill-in-a-treat. He had finished eating, and I had already talked sweet “doggie talk” to him so he wouldn’t be so lonely for his people.  Brownie has trouble with his back legs, so he lies down when he eats. Each time I took care of him, I would rotate the bowl to make it easier for him, and when he was finished I would brush him. I miss him.

Anyway, I was finishing up with Brownie when I heard the familiar sound of the UPS truck rounding the corner onto our street.  Since Brownie lives quite a distance from our house, Mom and I raced down Brownie’s driveway so we could look down the street to see if the UPS truck would stop at our house (we knew that ARCs would arrive any day.) 

The Brown Truck drove past our house and pulled into the circular driveway just past ours. 

Mom joked that the Brown Truck would come back to our house after turning around in that cicular driveway.

She was right!!!!!!!!!!!!!!

The Brown UPS Truck pulled up in front of our house and a man climbed out with a dolly and rolled three big boxes of Gracie Goodness to our front door… translated:

ARCs of Grace: A Child’s Intimate Journey Through Cancer and Recovery are here, and I am so happy to share!

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Launch Notes Radio, Craig Pollard, and Cancer for College

May 26, 2010

I loved meeting Khrys Vaughan of Launch Notes Radio this morning!  What a lovely lady, and what a wonderful thing she is doing by encouraging women starting new businesses.  

Have you heard about Craig Pollard? He has been in the news because he began an organization called Cancer for College. He is a cancer survivor who decided he is going to make a difference in the world, and I have to tell you that everything he is doing for cancer survivors makes me so grateful for him.  Whenever someone does something for cancer survivors, I feel like they are doing it for me.  Thank you, Craig, for helping cancer survivors accomplish their dreams.  And please thank your USC roommate, buddy, and cancer survivor supporter, Mr. Will Ferrell.  You both inspire me to do all I can to help others.

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Childhood Cancer and Launch Notes Radio

May 25, 2010

Melinda sends her love to friends and family.  Tomorrow, on Wednesday, May 26, 2010, Melinda will be a guest on Launch Notes Radio.  The broadcast will be at 8:30am PST/ 11:30am EST/ 10:30 am CST/ and 9:30am MT, and it will last for about 30 minutes.  Melinda will talk about her book, Grace: A Child’s Intimate Journey Through Cancer and Recovery.

 Anyone with an internet connection can listen by clicking the link below:

 http://www.blogtalkradio.com/launchnotes

 Also, anyone can call 646-929-1073 to ask Melinda questions… she would love this!

Thank you so much for your support of Melinda’s project to raise childhood cancer awareness, for supporting Melinda’s mission to help people with cancer, and for helping her with her ultimate goal of finding a cure for cancer. 

 With our sincere appreciation,

 Melinda Marchiano and Happy Quail

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Beads of Courage

May 22, 2010

What a great surprise to find that someone knows about Beads of Courage!  For those of you who have never heard of them, I would love to share my story.  Maybe someone will be inspired to give $25 to Beads of Courage– so that a child who is very ill will feel like I did when I received mine.

From Grace: A Child’s Intimate Journey Through Cancer and Recovery:

Just as I was beginning to sense the “chemo” feeling once again, luckily, I had another distraction.  Robyn entered with a large plastic box and a paper cup.  I was curious and intrigued as she plunked down table side, right next to me. 

     Printed on the box, in huge, colorful letters, was Beads of Courage.  Her short hair bobbed up and down excitedly, as she told me all about it.  The Beads are for cancer kids to create a necklace by stringing together different colored beads that represent pokes, operations, ER trips, etc.  She placed a long string in the paper cup, and then I began to make my selections. 

     Slowly reaching for the bright green beads, I dropped them, one by one, into my cup– they were for tests.  Next, I received white beads for days of chemo and yellow ones for days in the hospital.  I added the pretty dark blue beads, as they too joined the others.  They were for clinic visits.  Lastly, I acquired an orange bead for my PICC line, four tan ones for my biopsies and bone marrow aspiration, and black beads for pokes.  As black began to drown out the other colors in the pile, I realized just how much of a pin cushion I had become.  I already had quite a collection and began carefully threading them onto my big long string.  Reaching for the letter beads, I spelled out my name before looping and adding the rest.  Wow.  It was already nearly half full, and I then knew why Robyn had given me such a long string. 

     My necklace is a symbol of what I had done and what I would do.  I felt proud as it rested around my neck, each one of those beads telling a different story, a separate struggle and an eventual triumph.  It might be just a little necklace, but it means something so much deeper to me.

Copyright: Melinda Marchiano

Would you like to encourage a child who is very ill?  I enCourage you to visit www.beadsofcourage.org

 

 

 

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ARCs Ready at the Printer and Beads of Courage

This week has been a bit crazy with late night dance rehearsals for shows that start tonight!  I’m not sure if I can fit all of this excitement inside of Melinda!  Besides dancing all day to get ready for the performance tonight, I heard from Jenn at Greenleaf… and she said…

ARCs of Grace: A Child’s Intimate Journey Through Cancer and Recovery are ready at the printer!  Yes– READY!

It looks like I will be able to hold one in my hands before I turn sixteen.  What a birthday present!

Did anyone notice that the spaceshuttle Atlantis carried Beads of Courage this time?  Do you know what Beads of Courage are?  I will tell you tomorrow if you don’t look it up yourself first!

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Nurse Jen

May 21, 2010

Today, I want to remind everyone who reads this how precious life is.  We seem to go about each day as though they will keep coming forever… until something happens to wake us up. 

It’s true that I have already had a major two-year wake up call that has kept me focused on what is excellent and praiseworthy in this life of ours.  But sadness has entered my life today.  True, deep sadness.

I learned today that my dear, lovely thirty-two year old Nurse Jen has left us and passed on into God’s arms because of a tragic automobile accident.  My heart is broken thinking of how her family must feel and how this world has lost a brilliant shining light.  When I was near death from extremely low blood counts, Nurse Jen agreed to adopt me for the day in the Adult Transfusion Suite.  When I arrived at the hospital, I could barely keep my eyes open and was so weak I could not walk.  By the end of this day in Nurse Jen’s care, I was joking and balancing empty water bottles on my on my bald, shiny head. 

I fell in love with Jen’s spirit that day, and I will truly treasure the part of her she gave me that day to keep forever.  And Jen, I pray that God will help my spirit shine into the lives of others even half as brightly as yours. 

Hug those loved ones with all you’ve got…

P.S. There is a beautiful photo of Nurse Jen in Grace: A Child’s Intimate Journey Through Cancer and Recovery.  When you see her smile and the light in her eyes, you will feel her love.

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