A Childhood Cancer Survivor Blogging about the World of Childhood Cancer

Posts tagged ‘cancer’

Don’t Stop Believing

Here I was, sitting and thinking about the team. My friend posted Emmett’s hope flag hanging in Union Station in D.C. Instant tears, knowing that he and everything he has endured is honored and respected and he is spoken for! I love you, my Little Lion Man!

           ~Angela Williams

46 Mommas Banner in Union Station

I thought of the 46 Mommas all day today—especially when it reached 2:00 p. m. PST. I knew that a few of the Mommas would be sitting in the chairs, ready for TheBigShave. Have you imagined what they would feel like? I’m not talking about the new-found breeze on their heads, but what it must feel like inside. Each one of the Mommas has a huge reason why they are there. Somehow I know each of them would give more than their head of hair if it meant that pediatric cancer research would be fully funded. They all know that when that day comes—full funding for research—we will begin to make huge strides toward cures.

This is why they Shave For The Brave.

If you haven’t yet, please considering adopting a Momma.

Here is a video introducing each of The Amazing 46 Mommas

http://www.youtube.com/watch?v=TxJTi93URwc

Thanks for the Inspiration Anna!

“At 5:00 EST, 46 of the most beautiful women in the world will become bald. Their children had no option of losing their hair. These ladies are in D.C. at Union Station. Some have lost their children to cancer, some have children still in battle & some have survivors (but the worry never stops). Each shaved head brings awareness and money towards research and a cure for childhood cancer.”

                                                                 ~Jeri Where’saCure Geary

Thank you Angela, Anna, and Jeri. May the money raised today for St. Baldrick’s lead to what we are all working for, hoping for…

Don’t stop believing.                                        

Gold Ribbons

Grace: A Child's Intimate Journey Through Cancer and Recovery

September is Childhood Cancer Awareness Month.  It has been officially declared by President Obama over a year ago.

http://www.whitehouse.gov/the-press-office/2010/09/10/presidential-proclamation-childhood-cancer-awareness-month

I have yet to see a single Gold Ribbon in a public place this entire month.

We are tragically unaware.

I am not suggesting Gold Ribbons will cure childhood cancer; I am wondering why there are no Gold Ribbons.

What crawls up the back of my spine is that I know that lack of public knowledge about childhood cancer is costing lives.

Costing children’s lives….

To me this means war.

And so, from my own little corner of this World, I write, speak, raise money, and journey in HopeMobiles.  I know that my contribution to the war is a little drop in the bucket.  I also know that I am not alone. I love knowing others who have joined to help the kids in many different ways.  I want to thank you, everyone, for all you are doing. I need to give you one great big group hug right now!

Can you breathe???????

So, little itty bitty Melinda will keep doing my MelindaThing and please, everyone else keep doing your Thing too!

Maybe next year, we will see Gold Ribbons.

Gold Ribbons are great; the real victory will be a cure.

Children's Mercy Hospital

 The more we join together, the faster we will get there…

Directory of childhood cancer organizations

http://curechildhoodcancer.ning.com//page/childhood-cancer-directory

Alex’s Lemonade Database Project

http://www.mychildhoodcancer.org/?LQID=1&origin=facebook

46 Mommas Shave for the Brave at Union Station

http://www.stbaldricks.org/events/46mommas2011

Please Sir, May I Have Some More?

Grace: A Child's Intimate Journey Through Cancer and Recovery

“It gives me great pleasure to announce the formation of The Children’s Oncology Group Foundation. The COG Foundation will be able to directly receive philanthropic funds from both individual supporters and organizations.  One key advantage of the Foundation is that it enables COG’s leadership, comprised of a multidisciplinary team of doctors, nurses, laboratory scientists and other allied professionals, to direct funds raised for childhood cancer research to the areas of highest need and opportunity. In an era of rapid scientific discovery, this direct link will allow COG to rapidly respond and support research and new discoveries that have the greatest potential to benefit children with cancer.”

                               ~Peter C. Adamson, M.D.

                                 Chair, Children’s Oncology Group

Source:

http://www.keepandshare.com/doc/3140841/a-letter-from-the-chair-of-the-cog-1-pdf-september-14-2011-11-11-am-463k?da=y

This is great news. I will never forget my doctor, Dr. Dan, explaining to me how the collaboration between medical professionals in The Children’s Oncology Group and their sharing of information from studies has led to saved lives.  I feel the need to repeat Dr. Adamson’s words, “in an era of rapid scientific discovery”!!!

Speaking of “rapid scientific discovery,” did you notice this article from the New York Times about using gene therapy to “train a person’s own immune system to kill cancer cells”? It may be possible that this is the beginning of a whole new way of fighting cancer:

“In essence, the team is using gene therapy to accomplish something that researchers have hoped to do for decades: train a person’s own immune system to kill cancer cells.”

 http://www.nytimes.com/2011/09/13/health/13gene.html?_r=1&pagewanted=all?src=tp

 With all of this encouraging news, I realize that the enormous strides we need to take will require funding for research. It will be next to impossible to achieve adequate funding without raising lots and lots of awareness about childhood cancer. This is why I am thrilled about what has happened with Ellen and The Blanket Fairy! The Blanket Fairy has not given up “Making Some Noise” on The Ellen Show Facebook Page. She has one more message for all of us to share with Ellen:

Please save this photo and then go to Ellen’s page and post the following: 

 

Please COPY AND PASTE THIS:

Ellen PLEASE view this video “Letters To Ellen”. These letters were written to you by kids all over the United States on behalf of the hundreds of thousands of children all around the world. 

http://www.youtube.com/watch?v=yX67K-Y-a7k

Please go to this page and post and share this on your walls and blogs. We need to make more noise to get our mission accomplished! STOP CHILDHOOD cANCER!

The Ellen Show Page: http://www.facebook.com/ellentv?sk=wall&filter=1

At first I thought, gosh, Ellen already did such a kind thing, maybe we should just be grateful and not ask for more.  Suddenly, the image of Oliver Swift dashed through my brain.  He asked timidly, even though he had already been served, “Please sir, may I have some more?”

I hope that Ellen knows we are asking for more because we are grateful. We are asking for more not to fill our own overstuffed bellies, but for the ravaged little ones who cannot ask for help themselves.

For them, we politely ask, “Please Ellen, may the children have some more?”

Remember the Kids Childhood Cancer Awareness

 Ethan’s Army News

Join us for the 3rd Annual Ethan Jostad Softball Tournament this Saturday Sept 17th at the Cal Ripken Fields in White City on Hwy 140. Kristy Cook will be playing on Team Ethan helping the Ethan Jostad Foundation battle Childhood Cancer. Come get her autograph and watch the teams play ball. Food vendors, venue for the kids, fun games, Field Dedication & Balloon realease at Noon. Huge raffle with over 60 items. More details listed at www.ethansarmy.org on the event tab.

ethansarmy.com

www.ethansarmy.org


Ellen Loves The Blanket Fairy!

Grace: A Child's Intimate Journey Through Cancer and Recovery

“Ellen Got An Amazing Gift!” 

This is a quote from Ellen’s website. I love this! I really, really, really love this!!!

Thank you to everyone who supported The Blanket Fairy, helping to get Ellen to notice the beautiful gold package in the mailroom.  I have been amazed again and again by the strength, endurance, purpose and tenacity of the group I am truly honored to be a part of…

The Group of People Who Fight to End Childhood Cancer.

I witnessed this spectacular group of people join together for the cause of raising awareness for childhood cancer.  I want to give a special thank you to @abolishcancer for your help spreading the word on Twitter.

Did you see Ellen’s photo album? It was covered with Blanket Fairy Posters from all of us! It would have been impossible for anyone to miss.

Congratulations! This is a victory for children with cancer.  

Ellen Loved Her Gift From The Blanket Fairy!

On Ellen’s site today is a video!

http://ellen.warnerbros.com/2011/09/ellen_got_an_amazing_gift_0914.php

To Ms. Ellen DeGeneres,

Thank you. I have to pause now because my eyes are giving me trouble and it’s hard to see. This touches me deeply that you and your staff took the time to notice and share the desperate need of children with cancer. I want you to know that what you have done by taking notice– posting the video on your site about The Blanket Fairy—it lets us know that someone out there cares.  This gives us stamina to fight on for the children.

Thank you, Ellen, for the stamina.

Now, a gift of dance and comedy for you…

Faith, the Dancing Princess    http://www.youtube.com/watch?v=RdeJhGoC9NQ&NR=1

Gummy Worm Fate   http://www.youtube.com/watch?v=bsVt3bMMM8Q&feature=youtu.be

Finally, if you have your buzzers handy and feel the need to use them next week, 46 Mommas are going to Shave for the Brave in Washington D. C.  It might even be therapeutic, I don’t know. I do know a few of the Mommas and I know they are among the bravest, most kind women you will ever meet on this Earth. They are moms whose hearts have personally been crushed by the blow of childhood cancer. Yet, they fight on for the other children. These women have my utmost respect.

Ellen, you have my utmost respect as well. You heard the cries of thousands of people and you responded with genuine warmth and kindness.

I will never forget your kindness,

Melinda

Please bring your shears Ellen!

Please add this photo

to Ellen’s link  https://www.facebook.com/ellentv?sk=wall&filter=1

to ask Ellen to join the 46 Mommas next week!

Happy Birthday (September 14) to Alexa Nawrocki, a sweet angel baby girl with a special place in my heart.

For my praying friends, please pray for Melissa Masters, currently in ICU at Children’s Mercy and for

Nicholas George

http://www.nickybear.com/

 

Ellen and The Blanket Fairy

Grace: A Child's Intimate Journey Through Cancer and Recovery

What a beautiful package,  Blanket Fairy!  I know what lies on the inside must be even more beautiful… to catch the attention of Ellen… all for the purpose of helping children with cancer.

I know your game, Blanket Fairy.

I love your game, Blanket Fairy!

Anyone else want to help out the Blanket Fairy while you sit in front of your computer with a tweet here, a Facebook message there?

Please copy, paste, and send into cyberspace for others to share, as requested by The Blanket Fairy:

I have shared this with over 1 million people so far this morning. Please share and go post on Ellen’s Show page at least. Thanks so much 🙂

I just got the delivery signature confirmation and this package is in the studio. It got there late this morning. Please everyone take 30 seconds to share this and post the following on walls. ♥

Ellen this package was delivered to your studios today. Please be on the look-out for it. There is something very special inside that I handmade just for you. It is called Package of Hope for a reason… and when you open this up you will see why. With Much Love The Blanket Fairy ♥

Gold Package for Ellen


http://www.facebook.com/pages/The-Blanket-Fairy/490397070410?sk=wall

PLEASE POST THE ABOVE ON THESE LINKS BELOW:

http://www.facebook.com/ellentv

and

http://www.facebook.com/ellentv?sk=wall&filter=1

and on twitter at:

http://twitter.com/#!/TheEllenShow

Tweet this: Ellen this package was delivered to your studios today. Please be on the look-out for it. ♥ TBF and if you can attach a picture of the package above that would be great!

Okay, Blanket Fairy, make the GOLD moment happen! 

Note to Ms. Ellen DeGeneres…

You know, Ellen, The 46 Mommas are going to “Shave for the Brave” in Washington D. C. next week, on September 21 at Union Station.  Seriously. 46 moms will shave their heads to raise money for St. Baldrick’s and pediatric cancer research. I would love for you to consider joining them— not to shave your head, but to see first-hand the desperate need to raise funds to stop childhood cancer.  (If you feel you absolutely need to join them in ridding your cabeza of hair for this great cause, please, for the kids, do! If you will, I will too!!!!!!!!!!!!)  

I would love for you to see how this tremendous group of women is raising money toward a cure.

Washington D. C. September 21st.

46 Mommas Shave for The Brave.

I imagine you have someone who can make the reservation for you. Please have them do it!

Just in case Washington D. C. has a bit of a fall chill in the air, don’t forget to bring the gift from The Blanket Fairy, you will be warm as toast!

 Love you, Blanket Fairy… love you Mommas… Love you Ellen… Love you warriors…

 

The Pain of Caring

Grace: A Child's Intimate Journey Through Cancer and Recovery

On any day our lives can change.

At any moment, our lives can change.

On this day of remembrance, ten years after 9/11, I feel sorrow.  As television stations show news clips of the destruction of the World Trade Center again and again, all I can think of are the lives. I think of the lives lost and the lives that have been drastically changed by the catastrophe. 

In the senseless violence of these acts of terror, I find myself asking, “What can I learn from this?” The answers spin around in my head, making me dizzy. There is so much to learn from this. What I am learning from this is not complex, but plain, simple truths…

—We are mortal.

—Our time here is short.

—Since our time here is short, we have no time for hatred.

—Our purpose here is not to gather and “get”, but to seek out and give.

—What The Media World tells us is important means zippo in the Great Scope of Life.

—We need to love deeply, fully, holding nothing back at all.

My heart is with the suffering—those who are grieving a loss– those who are fighting for their lives– those who are helping loved ones fight for their lives. With everything in me, I want to be a building block for change that will relieve suffering.  I want to notice when people suffer and not turn away.  I want to be grateful for all of the people who give me love. I want to be especially grateful for those who are close to me; the people who will always and forever love me unconditionally.

I feel that sharing in the suffering makes us more Heart Aware.  There is a love I have inside me that comes straight from the pain of caring. I would not trade this love for anything.

Please don’t be afraid of the pain of caring; it is great nourishment and terrific exercise for our hearts.

One year ago yesterday… never forgetting…

Isaiah Alonso

http://www.youtube.com/watch?v=pNO92du1jgI

Thinking of Isaiah

 

 

 

 

Millions of Mini-Lights

Grace: A Child's Intimate Journey Through Cancer and Recovery

Amid the turmoil and chaos that is childhood cancer there are millions of mini-lights. By mini-lights, I mean moments of intense joy and happiness. Today, I am so happy, I feel like the lights are more like a beacon!

Happy 7th Birthday Braden!

My buddy, Braden Hofen, turned seven years old today.  Not one of us can come close to imagining the battle he has been through. Braden may be only seven years old, but I look up to him. He helps me be who I want to be and who I need to be.  It’s easy to get our thoughts twisted around by the routine of living our daily lives—and then—someone brings us back to reality. Braden has taught me about reality, about loving, and about courage.

Today, Big Bear, as your adorable mom, Deliece calls you… I send you HUGE Big Bear Hugs.  Please hold onto them because I will be coming to collect them soon.

I want to share with you all of you the elation and joy we feel along with Braden’s mom on this day that many believed would never come… 

Deliece shared these feelings today:

*** So today is all about celebration and happiness!  Today is a day that I’m wearing my HOPE shirt and shouting “TAKE THAT cANCER” as loud and long and to as many people as I can!!  TAKE THAT cANCER!!! You DID NOT get today!! Braden wins this one!!!!

*** Thank you LORD for this day…truly a miracle! I was driving home from Price Chopper where I picked up his John Deere cake for his friends party tomorrow and was smiling and laughing so much I was bawling and had to pull over to get it together! Happy through my entire SOUL! Thank you Lord, thank you!!

Does anyone have any Kleenex nearby? Why is it that tears of joy feel so good?

Braden’s victories makes me want to work harder so that the day we find a cure will be closer. If we all work as hard as Braden has to fight cancer, I don’t see how the illusive cure cannot be right around the next corner. If Braden  can work this hard– remember he is still a kid–what excuse can we possibly have as healthy adults not to do all we can to stop childhood cancer?

Braden, lead the way my little buddy…

Braden’s Hope for Childhood Cancer

Happy Seventh Birthday Braden!

Isaiah Alonso Foundation asks us to “Like” this page:

Please “like” this page. LaFontaine Hyundai will donate $1 to childhood cancer research through Hyundai Hope on Wheels for every like!

https://www.facebook.com/LaFontaineHyundai?sk=wall

 

The Truth Is, It Takes Sacrifice

Grace: A Child's Intimate Journey Through Cancer And Recovery

“A man never stands as tall as when he kneels to help a child.” ~ Abraham Lincoln

 “If our American way of life fails the child, it fails us all. ~Pearl S. Buck

“Children are one third of our population and all of our future.”  ~Select Panel for the Promotion of Child Health, 1981

“Children are the world’s most valuable resource and its best hope for the future.” ~John Fitzgerald Kennedy

“It is easier to build strong children than to repair broken men.” ~ Frederick Douglass

In recognizing this month of September as Childhood Cancer Awareness Month, I am happy to share these quotes about children.  Today, and every day (believe me!!!!!) I want to give an outpouring of loving thanks to the people who work with and treat childhood cancer patients.  I have heard people say over and over again, “How can anyone do that… work with very sick children?” Right now, at this very moment, I want to express my sincere gratitude to everyone who “is able” to work with sick kids. Thank you for choosing the path you have chosen so that I – and many other children—are able to be here today.

I want to personally thank Dr. Dan, Dr. Gonzalez, Dr. A., Dr. Keshen, Dr. Pickert, and the entire staff at Cottage Hospital.

When I imagine the sacrifice it takes, not only to achieve the needed education, but to live each day with the great emotional impact of their occupations, my respect and admiration grows for everyone who has stepped into the “ring” of fighting childhood cancer.  What would we do if no one sacrificed?

The quotes above remind us that “our” children are more than worth sacrificing for. Giving now to help stop childhood cancer will certainly act as an “Insurance Policy” for our children in the future. You don’t need to get a medical degree, or work in a hospital, or even work with sick children… we all have something to give. 

Sharing from Max’s Facebook page:

600 CHILDREN get DX with cANCER a day 365 days a year. 200 children die from it each day 365 days a year. Is your child safe? $$ = Protection for children. Please buy a policy from www.curesearch.orgwww.stbaldricks.org orwww.alexslemonade.org and treat your children’s future like you would your auto. Are your Children’s future in good hands? No restrictions apply, valid worldwide. STOP CHILDHOOD cANCER!

“The child must know that he is a miracle, that since the beginning of the world there hasn’t been, and until the end of the world there will not be, another child like him.” ~ Pablo Casals

46-7 Stop Childhood cancer

 

The Blanket Fairy

Grace: A Child's Intimate Journey Through Cancer And Recovery

I want to thank Britta Fleeson for the very first nomination– The Blanket Fairy— for the Big Heart Red Carpet Award for this National Childhood Cancer Awareness Month of September.  I find this fascinating… it is just as I had imagined… The Blanket Fairy would never show up to any award ceremony because he/she operates anonymously.  I will admit that I have had the extreme honor and pleasure of meeting The Blanket Fairy, but I have sworn to keep the identity of this loving and talented person a secret.

It’s okay Blanket Fairy— it just makes all of us love you even more. Would you like to know what The Blanket Fairy does? He/she donates soft blankets of love to children fighting pediatric cancer.  He/she follows blogs, Facebook and sites like CaringBridge to notice if a certain child needs a lift and then contacts that child’s parents about a gift that their child would enjoy. Warm, soft blankets played a huge role in my healing!!!  To receive something like this must be a wonderful moment that lasts and lasts for a child with cancer.

What a perfect nomination!

Would you like to volunteer to help The Blanket Fairy in  some way?

http://theblanketfairy.weebly.com/volunteer-fairies.html

Do you have more nominations?

Everyone have their gold ribbons on?

Just checking.

Love you Braden!

For anyone asking me, “Melinda, why the heck won’t you be still about all this childhood cancer stuff?”   I can’t.  You see, each day, children die from cancer.  It’s horrifying to me that it takes so long for childhood cancers to be detected.  It’s unfathomable to try to comprehend why childhood cancer receives so little funding in comparison with adult cancers.  Less than 2% of federal funding for cancer research goes to childhood cancer research. This first video does an excellent job of helping you understand this point; the second one reminds us all that time is short, that life is precious, that we all have to give sacrificially until we find a cure.  Please give generously from your resources.

The Pie: Childhood Cancer

http://www.youtube.com/watch?v=fjp1es04qgE&sns=fb

Michael Tells it as it is

http://www.youtube.com/watch?v=PW20UOk4sqU&feature=share

 

Think About the Unthinkable

 

Grace: A Child's Intimate Journey Through Cancer and Recovery

Welcome to the month of September.

This is National Childhood Cancer Awareness Month. 

“The White House announced today that September has been declared National Childhood Cancer Awareness Month.

President Barack Obama made the proclamation to highlight the recent successes in treating pediatric cancer and to underscore the challenges still facing young people dealing with life-threatening diseases.”

From an article in Hem/Onc Today, dated September 2, 2011 (today!)

http://www.hemonctoday.com/article.aspx?rid=87148

My friends, I ask you to continue your fight against childhood cancer. For those of you who may read these words who have never looked to face the world of childhood cancer, I ask you to turn and look.

What I want you to see most of all is not a “what,” but many “who’s.”

The children…

It is our serious responsibility to care for the young in our society. If each and every adult knew that tomorrow, 46 random U. S. children will be “chosen” as cancer victims, I don’t see how we can live on without swift, determined action. I don’t see how we can look at these faces and not think about how their lives matter. The dearest way we can show  that their lives matter is to make a difference for the children of the future.

Breanna

Thank you to everyone who is building the Childhood cancer War Machine for your hours of dedication, sweat, and tears. You know exactly who you are.

I do too.

For everyone else, please bring yourself to think about what is truly “Unthinkable.”

Children do get cancer.

If we know the truth, well…I guess we each have to think about it, and then think about what part we each play in that truth.

Without a doubt, we are all called to action.

Max...

 

“Unthinkable” by Alicia Keyes (played by Melinda in my Team Max Shirt (which by the way is a fashion “must have!”)

http://www.youtube.com/watch?v=pDI8FC_kMm8

Go ahead… think about the unthinkable… 

Beware, you will fall in love with the children, over and over again.

Fair warning.