A Childhood Cancer Survivor Blogging about the World of Childhood Cancer

Posts tagged ‘Childhood Cancer Survivor’

Who is Coming to the Rescue?

Grace: A Child's Intimate Journey Through Cancer and Recovery

When a disaster strikes, The Red Cross and other emergency services come to the aid of the victims of the disaster… regardless of where that disaster occurs in the world. This is the appropriate response when we see fellow humans suffering from unexpected catastrophes. How can we, as compassionate humans, stand on the sidelines and do nothing?

What would happen if our society truly understood the catastrophe of childhood cancer? What would happen if all of us could not turn away from the truth, the facts? What would happen if those with decision- making power in the media decided it was time to report about the Monster killing our children?

Awareness. That is what would happen. Awareness.

I am wondering if I need to get out that triple beam balance I spoke of a few days ago– you know– the one I was joking about whacking someone over the head with in Chemistry?

There are people who are “in the trenches” of the childhood cancer battlefield every single day. These people did not choose to be in the club they belong to. They didn’t have to get whacked over the head with a triple beam balance to leap into action. These are people who have lost their child to cancer, and they vow to make a difference so that other children do not have to suffer like their own child did.

These people amaze me. They inspire me. They blow my ever-loving mind. They open my heart.

How do they go on after losing their child to cancer? How do they turn all of that grief into HOPE for others? How is it that those who have suffered through the catastrophe are the ones who are showing up to help others at future disasters?

Can you imagine the world if the only people who showed up to help when a disaster strikes are people who have been through the same disaster?

It is time, right now, for each and every single one of us to join in the battle against childhood cancer. Don’t make our wounded warriors also be the lone rescuers. Please act.

Today, I give you two options. Bob Piniewski and Jodie Nunn are both shaving their heads to raise money for St. Baldrick’s. Please consider a donation to their efforts. Bob and Jodie are “Wounded Warriors” motivating me to do all I can.

“Do not merely listen to the word, and so deceive yourselves. Do what it says. Anyone who listens to the word but does not do what it says is like someone who looks at his face in a mirror and, after looking at himself, goes away and immediately forgets what he looks like. But whoever looks intently into the perfect law that gives freedom, and continues in it—not forgetting what they have heard, but doing it—they will be blessed in what they do.”

James 1:22-25

Facebook: Grace: A Child’s Intimate Journey Through Cancer and Recovery

Jodie Nunn will shave her head to raise money for St. Baldrick's. Would you like to donate in memory of Max?

Please continue your prayers for Breanna and for Crista…

Category:

1, About the Author, Posts from the Author

Tagged with:

Once You Choose Hope, Anything is Possible

Grace: A Child's Intimate Journey Through Cancer and Recovery

Have you ever prayed for a miracle?

Have you ever prayed for a miracle and then, one day, saw that miracle come true?

For me, today is that day.

The miracle is Braden.

I have written before of one of my heroes, Braden Hofen. Braden is six. I just learned the results of his latest scans after treatment for recurring neuroblastoma.

NO EVIDENCE OF DISEASE!

NO EVIDENCE OF DISEASE!

NO EVIDENCE OF DISEASE!

I am so thankful I had to type it three times, and I can only imagine what his family must be feeling!!!!!!!!!!  Besides giving thanks for the great news about Braden’s health, I am also giving thanks for the hundreds of people who have been praying for him. I am giving thanks for all of the people who have supported Braden and the Hofen family in every way—big and small.

I just hung up the phone from talking with Jonny Imerman of Imerman Angels. Guess who is their newest “Angel”? These “Angels” are “matched,” and they give support to patients going through similar cancer experiences. I absolutely love this! What a great idea, what a great organization, and what a blessing it was to speak with Jonny… no doubt he is a Real Angel. If you know someone going through cancer who could use support from someone who has already gone down the same path (is there a cancer patient who couldn’t use this?) this is the place to refer them!

While I am rejoicing in the miraculous news with everyone who loves and cares about Braden, my heart is, at the same time, heavy with the news today about a friend I have written of before, Breanna. She is fighting very, very hard, and at this time, is unresponsive. Her mom reports that her vital signs are strong. Please pray for Breanna. Please pray those same miracle prayers we have all prayed for Braden.

Let’s multiply miracles.

“Once You Choose Hope, Anything is Possible”

Grace: A Child’s Intimate Journey Through Cancer and Recovery

Miracle Messenger, Braden Hofen, HOPE!

 

Category:

1, About the Author, Posts from the Author

Tagged with:

I Think I Changed ‘Em

Grace: A Child's Intimate Journey Through Cancer and Recovery

It was an average day in Chemistry, a worksheet here, an activity there. I sat at the lab bench munching on Double Bubble. I was determined to find out the percent composition of sugar in gum. My lab partner and friend, Carolina, sat quietly beside me chomping her gum too. We were listening to the conversation of two guys sitting across the table from us. I had heard it before. Cancer… they were talking about cancer.

The lighthearted way it rolled off their tongues began to irritate me slightly.

It was not until they began joking about it that I began to ask myself, “I wonder if I should tell them?”

The thought barely entered my mind before the words were coming out of my mouth.

In the utmost matter of fact manner, I stated, “Actually, I had cancer.”

Their immature faces dropped and landed in a twisted heap on the linoleum floor. With their mouths slightly agape, their expressions displayed a complex mix of thoughts encased in shock. The naïve chatter had transformed into complete silence. I could have wacked them over the head with a triple beam balance and it would not have surprised them more.

Unable to form grammatically correct sentences, the occasional, “Oh, really,” “Um,” “ Ahh,” escaped them.

Although they assumed it was a sensitive subject to me, I was secretly in hysterics on the inside.

Their faces remained in a state of disbelief. Their minds tried to grasp the fact that a kid could get cancer, survive it, and look like I do.

Hello, welcome to reality… yeah…. Kids get cancer too…

On my way back to my desk, I saw them whispering to each other and discreetly glancing at me. They didn’t look at me the same way.

I think I changed ‘em.

Cool.

Facebook: Grace: A Child’s Intimate Journey Through Cancer and Recovery

"Messenger" Bridget Mathis can use our support.

Category:

1, About the Author, Posts from the Author

Tagged with:

Dear President Obama

Grace: A Child's Intimate Journey Through Cancer and Recovery

Dear President Obama,

 

My name is Melinda Marchiano, and I am sixteen years old. I am writing to you today because I see an urgent need for citizens of our country who are in desperate need. The citizens I am speaking of are the smallest, most fragile, and most incredibly brave people you have ever seen.

The citizens I speak of… children with cancer.

Did you know that cancer is the #1 disease killing children in our country?

Did you know that when children are diagnosed with cancer, 80% have advanced stages of the disease, compared to 20% in adults?

Did you know that the National Cancer Institute and the American Cancer Society allocate a smidgen of their budgets to childhood cancer?

Did you know that there has not been a single new drug approved to fight pediatric cancer in the last twenty years?

Did you know that CureSeach believes—with adequate funding—a cure is within our reach?

On March 16th and 17th, Childhood Cancer Awareness & Advocacy Day will take place on Capitol Hill. Please support the “Creating Hope Act of 2010” that was introduced by Senators Brownback, Brown, and Franken, and other childhood cancer legislation.

There are 40,000 children in the United States fighting cancer as I type these words. They need hope. Their parents need hope and their siblings need hope.

We are forgetting these children. There is no major celebrity to speak for them. There is little awareness of childhood cancer in our society, and what this translates into is suffering children.

I love my country—a land where anyone can speak for what they believe.

I believe these forgotten children need a Children’s Rights Movement.

I am the first to join the movement. Will you be second?

With my sincere gratitude,

Melinda Marchiano

16 Year-Old Author of Grace: A Child’s Intimate Journey Through Cancer and Recovery

 

Thinking of Anais on her Disney trip... have fun!

 

 

Category:

1, About the Author, Posts from the Author

Tagged with:

Get “The Baby” Out of the Car!

Grace: A Child's Intimate Journey Through Cancer and Recovery

What an incredibly beautiful day it is here! The birds are singing, and the sun is shining warmly upon me. (No offense to those who are buried in snow—I would actually enjoy meeting snow sometime!) I am not only basking in the sun, but I am basking in gratitude for the love in my life. I am as grateful for the love I have to give as I am grateful for the love I receive.

Can I tell you how grateful I am for your love?

It feels like the presence of gratitude multiplies love inside me—exponentially.

Gratitude drives me to look outside myself to find others in need. I know this sounds weird, but I am grateful for gratitude!

I think gratitude grows rotten and ferments inside us unless it gets “baked” into something that will help someone else. When we express gratitude in kindness and love for others, it bakes a Big Batch of Love.

Those who know me know exactly where I am going…

I see a HUGE need. Tomorrow, 46 children in the United States will be diagnosed with cancer. Tomorrow, 7 children in the United States will die from cancer. There has not been a single drug approved to treat pediatric cancer in 20 years. Pharmaceutical companies contribute 50% of funding for adult cancer research, and virtually nothing for children’s cancers.

Does this sound right to you?

It does not smell like something is baking at all. It smells to me like something is fermenting.

The more I learn about what is happening (more like what is not happening,) the more I know I must express my gratitude for my life by speaking out to try to help children who have been forgotten. It’s like when a baby gets left in a car on a hot day with many people around. Everyone thinks everyone else is tending to the baby. Meanwhile, the baby is ignored and left to die.

Please don’t think someone else is taking care of this; don’t wait for someone else to “Get the Baby Out of the Car.” There is a lot of work to be done. Become a worker bee to stop childhood cancer.

“See that you do not despise one of these little ones. For I tell you that in heaven their angels always see the face of my Father who is in heaven.”
(Matthew 18:10 ESV)

Please keep Anais Medina in your prayers for no fever and a great Disney trip.

Please continue your messages of support to CristaOrtz@gmail.com

Grace: A Child’s Intimate Journey Through Cancer and Recovery

Teach us, Anais! The spirit of a child with cancer!

 

 

Category:

1, About the Author, Posts from the Author

Tagged with:

little things ARE the BIG thing

Grace: A Child's Intimate Journey Through Cancer and Recovery

Today, I want to reach out to my friends and give you one great big, gigantic hug! You see, you showed me—with your actions—that your hearts are genuinely golden. Yesterday, I passed on a message I received asking for support for a fifteen year-old girl named Crista. (CristaOrtiz@gmail.com ) By last night, I heard that Crista has received dozens of messages and lots of prayer.

You are amazing! You are caring, loving, and kind. You could have just moseyed on with your usual daily routine and let “Someone Else” take care of it. But no. You took the time to send a message… even just a sentence or two…  to let Crista know there is someone who cares. Even a sentence or two can make a huge difference in the day of a child (or adult!) fighting a serious illness. We think we need to do something huge, or spend huge amounts of money to create something meaningful. But the truth is, every teeny –tiny drop of love I received when I was sick meant everything to me. And I am sure it is the same with Crista.

Okay all you kooky, crazy, childhood cancer fighting advocates and angels… gather together in my arms at this moment for one enormous group hug!

GROUP HUG!

I need to share one more thing I learned last night.

Last night, for the first time in a week, Crista spoke.

Crista even smiled.

When you think you can’t contribute because you can’t give something “BiG,” please know that it is the “little things” that ARE the BIG thing.

You are God’s Hands and Heart in action here on Earth. You are brilliant. You are beautiful.

Shine!

Grace: A Child’s Intimate Journey Through Cancer and Recovery

A Scarf for my Child Life Specialist, Jaynie

Jaynie filled my hospital stays with love.

 

 

 

Category:

1, About the Author, Posts from the Author

Tagged with:

Who Raised Their Hands?

Grace: A Child's Intimate Journey Through Cancer and Recovery

Yes, the Floodgates have seriously opened, with thoughts, ideas, and plans riding the rapids while I attempt to find a rudder to control my path. With opportunities opening before me to be able to help children with cancer, I search for the path that will bring a cure. The “Messengers of God” I spoke of yesterday are depending on each of us; their families desperately need our help.

Since the causes of childhood cancers are largely unknown, people speculate as to what the causes could be. Some people blame the environment, some blame genetics, and some people blame God.

They shake their heads and say, “Why does God give children cancer?”

My mom has the best answer for this question that I have ever heard.

This is what she believes, and she will tell anyone who asks!

God does not give children cancer. God heals. She imagines God gathering His children before He sends them to Earth. He explains that He needs some volunteers for a mission. He also explains that these volunteers will have to endure great suffering for His Kingdom, but that they will be a light in the darkness of this World. They will lead great numbers into the light.

Guess who raised their hands?

The “Messengers” did.

God’s Messengers keep inspiring me. I hate that they raised their hands, because of all the pain they endure. I love their selflessness in expressing their love for God and humanity.

I love God’s Messengers.

Messenger Reefie and his Grampa

Category:

1, About the Author, Posts from the Author

Tagged with:

Messengers From God

Grace: A Child's Intimate Journey Through Cancer and Recovery

If we have nothing to give, what have we got?

Nothing.

My letters to Oprah have ended, but the floodgates inside me have opened. I know this is just the beginning of the feelings that have begun gushing out. Even after writing all of those letters, I feel that I have just started to say everything that people need to know about childhood cancer. Most of all, I want people to feel what I am writing.

I have no doubt there are those who are thinking, “Melinda, Melinda, chill out, will ya???? Why the heck don’t you just take a chill-pill and stick to dancing?”

If you knew the children, you would do exactly what I am doing.

If you knew the children, you would be so fired up to help them that elephants couldn’t hold you back.

If you knew even one of these cancer-fighting-warrior-children, you would know instantly the purity of their beings. You would know that their suffering must be for some greater purpose.

Could that greater purpose be to make us kinder, gentler, more compassionate humans?

What greater expression of kindness and compassion can there be for these little ones, than finding a cure that will end their suffering?

I have no doubt these children are Messengers of God.

"Messenger" Kristy Meeks

Facebook: Grace: A Child’s Intimate Journey Through Cancer and Recovery

Category:

1, About the Author, Posts from the Author

Tagged with:

A Salute to General Christine and Mr. Mark Zuckerberg

Dear Oprah…

Grace: A Child's Intimate Journey Through Cancer and Recovery

Just kidding! That really was my last letter yesterday. Now, we play the waiting game. What do you think? Will HARPO Studios respond?

Today, I want to bring to your attention the administrator of the Oprah Please Do A Show On Childhood Cancer Facebook Page. I call her General Christine, because in just a few short months, she has gathered together over 50,000 voices for childhood cancer all in one spot. She calls us “Army.”

Thank you, General Christine, for your hours and hours of effort to create a united force of passionate advocates for childhood cancer. Thank you most of all for your tender heart that opened wide when you saw the huge need. Thank you for using your talents and gifts to give straight from your soul. Thank you for keeping the Army of Soldiers positive, engaged and enthusiastic about working toward our common goal.

Little did I know what I would have missed if I had not been active with Facebook when General Christine began assembling the Troops!

I need to thank Mr. Mark Zuckerberg for creating Facebook. I held off longer than anyone I know before I finally created a page– for the purpose of connecting with other people whose lives have been touched by childhood cancer.

Mr. Zuckerberg, you have forever changed my life. The gratitude I have for the friendships I’ve made, and the opportunity I have to link together with those of similar passion, is priceless. When you created Facebook, I imagine you had no idea that it would be a Tool for change for children with cancer. Your creation is a blessing.

Mr. Zuckerberg, one more thing… will you please consider a donation to childhood cancer research as a member of The Giving Pledge?

Sorry… is it wrong to genuinely thank someone and also ask for something in the same letter?

My hand is in saluting position for General Christine and Mr. Zuckerberg. It has been quite the mission. Let there be an answer and please let it be the one we are all praying for.

Stop Childhood Cancer

Category:

1, About the Author, Posts from the Author

Tagged with:

Golden Canisters of Hope

Grace: A Child's Intimate Journey Through Cancer and Recovery

Dear Oprah,

As I write this, nine Golden Canisters of Hope are on their way to you and your producers. There are over 50,000 people hoping, praying, and waiting for your response. Please let your answer be, “Yes!”

Please Oprah, do a show on childhood cancer.

You would think that if children were suffering anywhere, there would be brigades of rescuers who would show up. Yet, the smallest, most vulnerable of our world do not receive this blessing. The naked, ugly truth about childhood cancer is that it is virtually ignored.

I have been “Tapped.” Have you ever felt that God has called you to a mission? You see, I have this gratitude for my life that bubbles over… lives are precious, precious, precious… the love we have been given to share is everything. With this great gift and blessing of my life comes responsibility.  

God has spoken to me, “Show me Melinda. Show me your gratitude.”

There is no greater way for me to show Him how Great He is, and how grateful I am, than to do what He has put before me to help children with cancer.  Although this is my last letter to you, I will continue to do what is before me with ever-growing passion.

I guess that when you answer the nine Golden Canisters of Hope, this will be the same answer for my Make-A-Wish. Yes, the girl who wished for you to do a show on childhood cancer is me.

Once more, I am not asking to be on the show. I will admit that it would be thrilling beyond my wildest dreams to sit in your audience and watch this show happen. Please give me a bit of notice if you respond positively… I will need to find a sponsor… Kleenex!

Farewell,

Melinda

16 Year-Old Author of Grace: A Child’s Intimate Journey Through Cancer and Recovery

 

Golden Canisters of Hope on their way to HARPO Studios

Category:

1, About the Author, Posts from the Author

Tagged with: