A Childhood Cancer Survivor Blogging about the World of Childhood Cancer

Posts tagged ‘Childhood Cancer Survivor’

Oprah! Please Do a Show on Childhood Cancer!

http://www.youtube.com/watch?v=IgC6YKlrG9A

There is a newly created Facebook page with the title above that I would love to have all of you “like.” Even though this page was just created yesterday, there are already over 2,000 people who have joined in the request.

There is so much that people need to know about childhood cancer. I think that when children suffer, it is difficult for people to see and hear about. I understand. The important thing is, if no one looks, no one sees, no one will help and these children and families who are barely hanging on are alone in their nightmare. We cannot do this– we cannot let these children and families claw and struggle their way through the misery. Yes, it is horrible– but what we can do about this is beautiful.

It’s time for us to take off our “Fuzzy Glasses” and look at the realities of childhood cancer that exist before us. I pray that my book will do for these families and children exactly what I intended it to do… help. I want to thank this “sister” of a 2 year-old cancer patient for sharing this with me after she read Grace: A Child’s Intimate Journey Through Cancer and Recovery:

“My mom bought an early copy, and I’ve been up all night reading (and re-reading) it. It’s indescribable… it’s the first time I’ve ever read/heard of a story that was similar to that of my sister and family. Everything that you went through…. the fighting against this illness, the SURVIVING, even the depression that you went through after remission, was something that my family endured. Your detailing of treatment was what I needed, to hear in words what my baby sister was going through. She was too young to articulate her pain, and your book put into words what I saw everyday for two-and-a-half years. I thank God that she was too young to be depressed about her situation…but I wasn’t. I struggled for years, even after she was given a clean bill of health, with anxiety and depression and God knows what. Your book helped me realize that I wasn’t alone.

I just wanted to send you a message and let you know that you are really one of the most amazing people I’ve met. Seriously. Thank you for putting into beautiful words your experiences with cancer… your book is something that I’ll keep forever.”

There are so many ways we can reach out and help. What a blessing it is to be able to help!

 

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No Money– Just a Few Minutes!

My friends, today I have another “free” opportunity to show how much you care about improving the lives of children with cancer.

http://www.thepetitionsite.com/1/CureChildhoodCancer/

Also, have you ever wondered how much you really do know about childhood cancer? Have you ever wondered how much you don’t know?  There is a short survey to help you:

 (http://www.surveymonkey.com/s/XQGLLQS

There may be some surprises for you. I will admit there was a big surprise for me. I was shocked to learn what a  pitifully tiny amount that the American Cancer Society contributes for childhood cancer. Hmmmmm…. I may have to work on them to create a “Childhood Branch.” I mean, kids are “Americans” too!

Does it appear to you that I am on a mission? Yes, I am certainly on a mission! There is no way I can sit back and do nothing… I truly love the children. They need us!

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Little Samantha

This link is about a little girl who is fighting brain cancer– written by her loved ones as Samantha struggles between life and death.

http://www.caringbridge.org/visit/samanthaarnett

There are still tears in my eyes from reading this. I’m not posting this to make you cry as well, but because Samantha’s plight will put a name and a face to childhood cancer. I imagine how her parents must feel, and her siblings. We really don’t have any time in this world to spend on meaningless things. There are so many people who need our love and our care. This link lights the truth– our mission in this life is to give freely to others in need.

I will be thinking of Samantha, and all of the other children who are bravely fighting the mean, ugly, horrific Beast called Cancer. While I am thinking of them and praying for them, I will also keep formulating ways to help them. Please, please join me.

 Breanna, Clay (you cancer warrior, you!) Blake, and Logan, you are doing it! Keep fighting!

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Hugs and More Hugs

Today I am offering another suggestion for what you might do to observe National Childhood Cancer Awareness Month. This suggestion is one that does not cost even a dime. You will need two arms that you can wrap around a child, and just a bit of your time. It’s time to hug that child with cancer, or that mom who is caring for her child with cancer, or for that dad who is trying to be so strong.

This may be hard to understand… a child who is seriously ill treasures the smallest of gifts– “small” to you, but HUGE in their life. To be very honest with you, one of the things I was most thankful for when I was sick was just having someone be with me. They didn’t need to say a word, just be. Somehow I felt incredibly loved when anyone would sit with me. When I was semi-permanently plunked for hours, days, and weeks, it was a brilliant treasure when someone cared enough to spend time with me amid all of my physical, emotional, and psychological problems.

When you are a complete mess and someone still wants to be with you, and still wants to love you and hug you, what a miracle happens in your soul!

Give away those free gifts… giving may feel even better than receiving them!

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Gosh, I have missed you!

My goodness, my goodness! Do you ever get so busy in life that you feel things are swirling around you????????

Well, this would be me these past three weeks:)

The really difficult thing about not posting for a long time is that so much happens in that time that I have a hard time condensing the happenings. Here is my Campbell Soup “Condensation” of the past few weeks:

August 10–Kelly Teal from KSBY TV and Carina Corral taped an interview:

Published author, dancer, cancer survivor: Nipomo teenager being honored this weekend – KSBY-TV- msnbc.com:
http://cp2test.msnbc.msn.com/id/38693561/from/toolbar

August 12– I traveled to Santa Barbara for a TV interview with Marni Rozet, Executive Director of the Teddy Bear Cancer Foundation. It will air on Cox 8 during September for Child Cancer Awareness Month.

August 13– Early morning radio interview to talk about the upcoming American Cancer Society Tolosa Winery Fundraising Event with Amy and Kahuna, Coast 101.3.

August 14– All day dance rehearsal for Academy of Dance School Show

August 15– Early morning rehearsal at the Performing Arts Center– show at 2:00 p.m.  5:30– speak a few words at ACS Tolosa Winery Event.

August 18– Travel to Los Angeles with Teddy Bear Cancer Foundation for their annual Universal Studios Event.

August 19– First day of my junior year in high school… trying to add a community college course to my schedule.

In the meantime, I have been doing interviews and writing articles:

 RIT Open Publishing Guide Article:

http://opg.cias.rit.edu/battling-cancer-grace-publishing-perspective

(This one was fun to write and I got to meet Rachael… very, very nice!)

 TheSBON Interview:

http://thesbon.com/grace-interview/

(Thank you, Kira!)

 Choose to be a Hero Interview:

http://ichoosetobeahero.com/2010/08/24/grace-an-interview-with-melinda-marchiano/#sf488116

(My thanks to Shennendoah!)

Aren’t you happy I gave you the Campbell Soup “Condensed” version?

August

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KSBY News San Luis Obispo, Santa Maria, Santa Barbara, Paso Robles – Published author, dancer, cancer survivor: Nipomo teenager being honored this weekend

KSBY News San Luis Obispo, Santa Maria, Santa Barbara, Paso Robles – Published author, dancer, cancer survivor: Nipomo teenager being honored this weekend.

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Dave Congalton KVEC 920

I had a great time today talking with Dave Congalton in a radio interview to promote the American Cancer Society Gala Fundraiser that will be held at Tolosa Winery in San Luis Obispo at 5:30 on August 15th. I loved Dave’s questions– especially the one about my port and Lance Armstrong! Gosh, he is funny! Now you are going to have to listen to the podcast to see what all that hilarity is about:) I finally had the chance to meet Kathleen Schroeder– American Cancer Society volunteer extraordinaire and Dave Ruiz– another volunteer extraordinaire, with a voice that belongs on the radio!

This morning, just after I yawned and opened my eyes, Kelly Teal from KSBY came to our house to tape an interview that will likely air on KSBY TV on Friday. Tomorrow, Mom and I are heading back  to Santa Barbara so I can do a TV interview with Marni and The Teddy Bear Cancer Foundation. Have I told you lately how much I love the Teddy Bear Cancer Foundation????????????? Also, September is Childhood Cancer Awareness Month. This child is asking you to “Be Aware!!!!!!!!!!!!!!!!!!!!!!” Your helpful assistance in some way is even better:)

Right after the interview in Santa Barbara, I am looking forward to joining Starbright World in their online chatroom. They are a group that does wonderful things to support teens with life-threatening illnesses. I am already looking forward to meeting them. I pray that I will be able to help them in  some way– somehow I already know that they will be helping me!

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Grace: A Child’s Intimate Journey Through Cancer and Recovery

http://site.happyquail.net/

Lots of new information on the Happy Quail website:)

Grace is here!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

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My Brother, Nicholas

Yesterday, my oldest brother turned twenty-one.

Let me tell you about Nicholas. Nicholas was born with a maximally curious mind. As a newborn, he never slept much, preferring to continuously take in information from his environment. This behavior has continued to this day, making my brother one of the most intelligent people I know. He is a mechanical engineering major at Sacramento State, and we are enjoying having him home for the summer. He’s working at the place he has loved working for the past three years, Melfred-Borzall.

One other really cool thing about Nicholas is his interest in racing. He is on the Hornet Racing Team at Sacramento State, where they build a racecar each year and take it to competition. He invested hours and hours and hours of his time and effort, and he relished every minute of it. I love how when you are doing what you love to do, it doesn’t seem like work. I love how Nicholas has found what he loves to do… and I love that he is doing it!

Finally, I need to tell you how Nicholas helped me through my darkest days of illness. Every weekday morning, without fail, the phone would ring at 10:10 a.m. It would be Nicholas on the other end of the phone, calling from his break at work to ask how I was doing that day. Sometimes, he would sit with me and teach me how to do the Rubik’s Cube. (Man oh man, did I ever need distraction!) And Nicholas prayed for me. He prayed for me.  I love Nicholas’ faith!

My brother, Nicholas, blesses my life every single day. I pray God will continue to bless his life, and at the same time I thank God for blessing my life with Nicholas.

Happy Birthday, Nicholas. This Quail loves you!

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Marian Cancer Care Support Groups

What a wonderful thing Marian Cancer Care is doing for survivors! I have had the honor of speaking with three of these support groups over the past couple of weeks. Meeting people is something I love, and meeting these people, well…. I told my mom, “These are my people.” I seriously love these folks who have been through the same battle I have been through. There is a connection, an understanding, and a deep care that I have discovered which exists between survivors– no matter what age they are. It is remarkable; it is truly something I treasure.

It touches me that there are people and places who reach out to those who are suffering, or have suffered through cancer. I know how critical it is that cancer patients have support even after treatment has ended. Unfortunately, even when cancer cells are pummeled to death by treatment with chemo and radiation, there is a time after treatment when you’re wondering if you will ever feel well again. There is a time when you wonder, “What now?” There is a time when you need someone to listen to you tell about all of the things that are still not physically right– and things that are not emotionally right.

A lovely woman told me today that when she told her doctor she was having digestive problems after finishing treatment, he told her he did not want to hear about it. Others have told her it is “in her head.” 

We can do better than this. We can do much better. Number one, let’s believe patients when they explain how something is wrong. Number two, let’s reach out with loving hearts, listening ears, and acts of kindness to help each other through the rough times that life flings our way.

I thank Marian Cancer Care for reaching out to help these people. I thank them for caring, for listening, and for loving.

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