A Childhood Cancer Survivor Blogging about the World of Childhood Cancer

Archive for the ‘Excerpts’ Category

Marian Cancer Care Support Groups

What a wonderful thing Marian Cancer Care is doing for survivors! I have had the honor of speaking with three of these support groups over the past couple of weeks. Meeting people is something I love, and meeting these people, well…. I told my mom, “These are my people.” I seriously love these folks who have been through the same battle I have been through. There is a connection, an understanding, and a deep care that I have discovered which exists between survivors– no matter what age they are. It is remarkable; it is truly something I treasure.

It touches me that there are people and places who reach out to those who are suffering, or have suffered through cancer. I know how critical it is that cancer patients have support even after treatment has ended. Unfortunately, even when cancer cells are pummeled to death by treatment with chemo and radiation, there is a time after treatment when you’re wondering if you will ever feel well again. There is a time when you wonder, “What now?” There is a time when you need someone to listen to you tell about all of the things that are still not physically right– and things that are not emotionally right.

A lovely woman told me today that when she told her doctor she was having digestive problems after finishing treatment, he told her he did not want to hear about it. Others have told her it is “in her head.” 

We can do better than this. We can do much better. Number one, let’s believe patients when they explain how something is wrong. Number two, let’s reach out with loving hearts, listening ears, and acts of kindness to help each other through the rough times that life flings our way.

I thank Marian Cancer Care for reaching out to help these people. I thank them for caring, for listening, and for loving.

Greenleaf Book Group and Grace

I am a researcher. Before launching myself into this book-creating process, I learned as much as I could about many aspects of publishing. There are so many options that it can be overwhelming trying to sort everything out in order to make good decisions. I am extremely fortunate to have had a mentor named Matt who placed many options in front of me that I could investigate. He never told me what he thought would be best for me and my book, but instead he described the options with the pros and cons. I cannot say how much I appreciate what he has done.

It’s funny that many people think that they have to tell someone what to do in order to be helpful. Actually, I prefer the “Matt Method,” because everyone is different. What I want for my book will be different from what you want (okay, we all want “best-sellers”!!!!!!!) 

As I hold one of the very first books of mine– hot off the press– I can’t help feeling gratitude. I am grateful to God for my life! I am grateful to my mom for typing over 90,000 words that compose my book. I am grateful to Matt for lighting the Greenleaf Option. I am grateful to Greenleaf Book  Group for allowing me to work alongside their incredibly talented, caring, and fun folks to make Grace: A Child’s Intimate Journey Through Cancer and Recovery just how I wanted it. I am grateful to Gramma and Poppy for their love and support for my project that was born straight from my heart. I am grateful for the opportunity to share my heart with readers.

Grace is in my hands right now, but it feels like “she” will always remain in my heart.

Dr. Maya Angelou and PULSE on Tour

What does Melinda have to say today about Dr. Maya Angelou?

Yes, I have posted before about Dr. Angelou. I have great admiration for her writing, and even more admiration for the person she is. I love to hear her recite her own work. For these reasons, and more, I used one of her quotes in my book. (Not going to tell you which one– hee hee!) 

Since I used one of her quotes, I felt that the very least I could do would be to send her a copy of Grace: A Child’s Intimate Journey Through Cancer and Recovery.

Guess what? Dr. Maya Angelou sent me a beautiful thank you note. I am so happy to know that she received it, and this kind expression of gratitude makes me think even more of her. Isn’t it inspiring to communicate with people who have integrity and class?! I imagine that Dr. Angelou receives many gifts, but she takes the time to show her gratitude.

Sadly, writing thank you cards is becoming a lost art. Speaking of arts…

Do you ever watch “So You Think You Can Dance?” I’m sure this will come as a big surprise– I love the show! This weekend, I will travel to Los Angeles to dance my little feet and heart out for three days at PULSE on Tour. There is an incredible organization called Children’s Cancer Recovery that has given me a scholarship to attend and I am so excited, I feel that I just may pop!  Mia Michaels is one of the choreographers I will be learning from. Oh my gosh!

Remembering all of those days where I was too sick to dance makes me grateful on top of grateful that I can attend PULSE–and most of all– grateful that my body will let me dance!

DANCE !!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

International Charter of Rights

Are you familiar with Matthew Zachary? How about “I’m Too Young for This?” I have to tell you that they are doing one amazing job of giving everything they have to help young people (15-40) with cancer. Now, they are working together with other organizations, like LIVESTRONG, to create an International Charter of Rights for young people with cancer. Young people face many different challenges when confronted with cancer than those who are older.

For one… it takes much longer for young people to get a diagnosis and many times, we are misdiagnosed. Very unfortunately, as most everyone knows, this means that their cancer spreads further. I can personally connect with this. It took nearly four months of going to the doctor every week (and having her look at my mom and I like we were out of our ever-loving minds!) and my mom had to stand her ground and demand tests before I finally received my diagnosis. Four months. Four months!

Imagine how much cancer can spread in four months!

In the meantime, I was slowly suffocating. I realize this is not my doctor’s fault.

And I am not the only one. I care about the others.

Here comes the easy part…  this will only take a moment to show your care.

Please sign the charter. You may save someone’s life. 

Thank you i2y Stupid Cancer, Teenage Cancer Trust, CanTeen, LIVESTRONG,  and SeventyK.!

I love my life!

 www.cancercharter.org

Larry is Nine!

Boom, Kaboom…. Crash, Bang, Boom!

Yesterday, Larry turned nine years old. I will never, ever forget the day my mom brought him home to us. He was only 7 weeks old; he had a big, pink belly, and his ears were bigger than his body. He loved snuggling in his blankets then, and he hasn’t lost the joy of being wrapped in soft blankets to this day. This love of snuggling in blankets helped him through the trauma of fireworks on July 4th.

Each year, when Independence Day rolls around, poor Larry comes unglued when the fireworks begin popping. This year, we wrapped a blanket over his head (covering those huge ears) and he remained calm, cool and collected the entire evening. Somehow we cannot bring ourselves to sedate him with substances, so this “natural” form of sedation is a beautiful find!

Larry came to bed last night in my room, as he always does, with a belly full of his once-a-year ice cream treat. He knew it was a special day. We awakened to thunder and lightning at 4 AM. Poor Larry shook and shook. I don’t know which he dislikes more– fireworks or thunder and lightning!

For all of you who love dogs, I will add this article to my story:)

http://www.ncregister.com/site/article/paws_for_patients/

New LIVESTRONG Spot

Oh my gosh… this makes me think of all of the survivors… and everyone who did not survive. It makes me think of how, even when we are alone, we are strengthened by the love and care we share.

It makes me grateful for everyone who is giving it their all to leave this world a better place. Yes– a world without cancer is absolutely a much better place.

Where’s my bike?????????????????

http://www.facebook.com/l.php?u=http%3A%2F%2Fbit.ly%2FcmxG2q&h=0e710EDxtzh6_5kDszLd_xKuYdA

Memoir Writing Class

I had the pleasure of speaking with a group of people today who are taking a memoir writing class. It strikes me that the more opportunities that I have to connect with authors, the more I realize how important it is for us to do this. Writing is such a solitary existence– the human-ness in us needs the bonds.

Not only do we benefit from the “love bonds” between us, but there is always, always something new that we can learn from one another. There is no such thing as “smarter” or “better,’ but only our willingness to share the uniqueness of our lives and ourselves with each other. Seriously, when we learn something of value, we need to pass it on. I guess that the challenge is to look within ourselves to find exactly what that is that we have to share.

I realize, being only sixteen years old, that I do not have the wisdom and insights that others who have been on this Earth a long time have. The more I learn, the more I learn that I have bunches to learn. Maybe, because I am only sixteen, I just might have an insight to some things in life that my older counterparts would not recognize. Maybe, just maybe, I have something to share of value.

Actually, everyone has something of value to share. Our job is to find it– and give it away.

Poppy’s Birthday and InspireMeToday

Tomorrow (7/6,Tuesday!) a little sumpthin’ sumpthin’ I wrote will be featured in the “Today’s Brilliance” section on www.inspiremetoday.com.   =) If people really like it, and it gets a lot of “hits”, it may be published in the Huffington Post! =D

500 words; I hope to inspire you. Please pass it on…

Again friends, thank you for your inspiration.  Thank you for your support.

This young “rookie” appreciates you.

And most important of all… today is Poppy’s birthday. I love you so much, Poppy!

Happy Birthday with love!

Julie, Nikki, and Squishy People

Today I met a woman named Julie. Julie is a nurse, and she is a beautiful, loving, caring woman who radiates love all around her. Do you know what I am talking about? I love when I meet someone who exudes so much warmth and love that their life vibrations  go straight through me.  I left her three hours ago and I still feel the glow from deep within her.

I call people like Julie “Squishy.” Imagine poking your finger into the Pillsbury Dough Boy and how soft, supple and tender he is. Well, Julie is one of those tender people walking this Earth, and she is not doughy because of any excess skin or fat. She is so tender that she “squishes” when touched. And her Squishiness is a direct result of being filled to the brim with love!

I am adding Julie to my handful of people in this life who I consider Squishy. Nikki, from the Teddy Bear Cancer Foundation is quite possibly the Squishiest of the Squishies!

Are you Squishy? Why not give it a try? It makes people around you feel incredibly loved:)

Just Turned 16–Life is Great!

Not a day arrives that I don’t wake up (thankfully!) and feel gratitude for breathing, opening my eyes, and being able to get out of bed. This past weekend, I was especially spilling over with thanks. You know how the simplest, most pure things in life bring the most joy?

My 16th birthday was last Saturday. For the very first time since last August, I did not lift a finger to do homework… not even a pinky! The weather was something out of a Weather Perfection Catalog and I basked in the warmth of the weather and the love around me. My entire family went for a morning walk around the bike path and Gramma and Poppy joined us poolside in the early afternoon for a BBQ feast of steak, crab, and scallops. Mom baked a Lemon Chiffon Cake and served it with ice cream, whip cream and fresh blueberries, raspberries, blackberries and strawberries. Yes, she knows what I like!

Yum! Anyone hungry?

In the early evening, we went to the Shell Beach tidepools. I love living near the beach and it never gets old to watch the sun set with the waves crashing nearby. Spiritual renewal is touchable at times like this.

My brothers, Nicholas and Dean, gave me a present of Dueling Floaties with squirt guns mounted on them for fun summer pool games ahead. I already tried one out yesterday– squirting my dad while he tried to relax in the sun. I think those babies are going to be lots of fun!